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Dr. Barbara Gomes did her first degree in Psychology and Health at the University of Porto (2001), including a one-year internship in the Palliative Care Unit of the Portuguese Cancer Institute - Porto. She got an MSc in Palliative Care with distinction (2006) and a PhD in Palliative Care from (2012) from King's College London. Her other training covers Epidemiology, Statistics and Health Economics. She is Coordinating Researcher at the Faculty of Medicine and the he Center for Innovative Biomedicine and Biotechnology (CIBB) of the University of Coimbra (Portugal), and at the Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation (King's College London, UK). At CIBB, she coordinates the thematic line Healthcare Challenges and leads the Palliative Care, End of Life and Bereavement Care Group. She is also scientific advisor of the "la Caixa" Foundation Programme for enhancing comprehensive care for patients with advanced diseases in Portugal since 2018. In 20 years of research work and with an H-index of 34, Barbara has published over 90 papers in international peer-reviewed journals with more than 7000 citations, some of which are among the most cited in the field. In 2006 she was awarded the Cicely Saunders Academic Excellence Prize for her MSc studies and in 2013 the joint second prize of the Early Researcher Award by the European Association for Palliative Care (EAPC) for her PhD studies. The latter prize is awarded to honour young scientists in the field of palliative care who have made an outstanding contribution to research. She has led several studies on end of life care, including a mortality followback survey with bereaved relatives of cancer patients in London, UK (QUALYCARE study) and a pan-European population survey on preferences and priorities for end of life care (PRISMA survey). In 2022 she was awarded an European Research Council Starting Grant to research choice on where people die. Also in 2022, as part of an international consortium, she wan European Commission funding to undertake an pragmatic randomized controlled trial of a navigation intervention for people with cancer in old age and their family caregivers, in which she is leading one of the work packages. She was first author of a Cochrane review on the effectiveness and cost-effectiveness of home palliative care services for adults and Principal Investigator of a project to train early researchers and develop an optimised model of home palliative care in Portugal (DINAMO project). She was associate editor of BMC Palliative Care, reviewer for several funding bodies and journals including JAMA, the Journal of Clinical Oncology, Palliative Medicine and the Journal of Pain and Symptom Management. She was also founding member of the Portuguese Palliative Care Observatory. Barbara's research interests focus on dying places, in particular the preferences, factors and the outcomes associated with dying at home for patients and their families. Her research has informed health policy and triggered strategic planning, service developments as well as dialogue with the public and the media about palliative care in Europe and beyond. Her work has been referred in national policy documents in the UK and Portugal and debated at the House of Lords (UK) and at the Portuguese and Scottish Parliaments. Several independent organisations have used her work to highlight issues surrounding place of care and death (WHO, OECD, Nuffield Trust, King´s Fund, Calouste Gulbenkian Foundation and National Palliative Care Associations). Her studies have also reached the public arena via press coverage (by the BBC, NPR, ABC News, Guardian and Huffington Post among others). The research methods she has developed during her MSc and PhD studies have been adopted by others in Europe and beyond (colleagues undertook projections on place of death in Belgium, Germany and Scotland and conducted QUALYCARE studies in Northern Ireland, Dublin and New York).
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Identification

Personal identification

Full name
Bárbara Oliveira Gomes da Silva

Citation names

  • Barbara Gomes

Author identifiers

Ciência ID
D812-8A0F-0727
ORCID iD
0000-0001-8149-1806

Email addresses

  • barbara.gomes@kcl.ac.uk (Professional)
  • barbara.gomes@uc.pt (Professional)

Websites

Knowledge fields

  • Medical and Health Sciences - Health Sciences
  • Social Sciences - Psychology

Languages

Language Speaking Reading Writing Listening Peer-review
Portuguese (Mother tongue)
English Proficiency (C2) Proficiency (C2) Proficiency (C2) Proficiency (C2) Proficiency (C2)
Spanish; Castilian Intermediate (B1) Advanced (C1) Intermediate (B1) Upper intermediate (B2) Upper intermediate (B2)
Education
Degree Classification
2024/07
Concluded
 Health Sciences - Biomedical Sciences (Título de Habilitação de Coordenação Científica)
Universidade de Coimbra, Portugal
2012/10/01
Concluded
 Palliative Care (Doutoramento)
King's College London, United Kingdom
"Dying of cancer at home: associated factors, experiences and outcomes" (THESIS/DISSERTATION)
2006/05/01
Concluded
 Palliative Care (Master)
King's College London, United Kingdom
 Distinction
2001
Concluded
 Psychology (Psychology and Health) (Licenciatura)
Universidade do Porto Faculdade de Psicologia e de Ciências da Educação, Portugal
 15/20
Affiliation

Science

Category
Host institution 		Employer
2022 - Current Invited Coordinator Researcher (Research) Universidade de Coimbra Faculdade de Medicina, Portugal
2007 - Current Researcher (Research) King's College London - Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, United Kingdom
2013 - 2016 Visiting Researcher (Research) Universidade do Porto Instituto de Saúde Pública, Portugal
2004 - 2007 Research Assistant (Research) King's College London - Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, United Kingdom

Teaching in Higher Education

Category
Host institution 		Employer
2020 - 2021 Invited Associate Professor (University Teacher) Universidade de Coimbra Faculdade de Medicina, Portugal
Universidade de Coimbra Faculdade de Medicina, Portugal
2016 - 2018 Invited Assistant Professor (University Teacher) Universidade de Coimbra Faculdade de Medicina, Portugal
Projects

Grant

Designation Funders
2024/03 - Current Floriani Chair Programme in Palliative Care
N/A
Principal investigator
Fondazione Floriani
Ongoing
2022 - Current Choice of where we die: a classification reform to discern diversity in individual end of life pathways
948609
Principal investigator
European Research Council
Ongoing
2022 - Current EU-NAVIGATE Implementation and evaluation of a navigation intervention for people with cancer in old age and their family caregivers: an international pragmatic randomized controlled trial
101057361
Researcher
European Commission
2011 - 2023 DINAMO - Advanced training and research to optimise home palliative care
n/a
Principal investigator
King's College London - Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, United Kingdom
 Fundação Calouste Gulbenkian
Ongoing
2018 - 2020 CARE Campus - Caregiving and Ageing Reimagined for Europe
n/a
Researcher
EIT Health
Concluded
2018 - 2018 Global burden of palliative care: understanding current and future needs
n/a
Researcher
King's College London
Concluded
2010 - 2016 OPT_CARE - Optimising palliative care for older people in community settings
n/a
Researcher
National Institute for Health Research
Concluded
2011 - 2013 GUIDE_CARE - Geographical and temporal understanding in place of death in England
n/a
Researcher
National Institute for Health Research
Concluded
2008 - 2011 PRISMA - European priorities for research and measurement in end of life care
Health-F2-2008-201655
Researcher
European Commission
Concluded
2010 - 2010 Understanding place of death for patients with non-malignant disease: a systematic literature review
n/a
Researcher
National Institute for Health Research
Concluded
2005 - 2006 Improving end of life care for the elderly at the hospital community interface: an A&E audit
n/a
Principal investigator
Guy's and Saint Thomas' Charity
Concluded

Contract

Designation Funders
2021/01/01 - 2025/12/31 Centro de Inovação em Biomedicina e Biotecnologia - Laboratório Associado
LA/P/0058/2020
10.54499/LA/P/0058/2020
Universidade de Coimbra, Portugal

Universidade Nova de Lisboa Laboratório de Instrumentação Engenharia Biomédica e Física da Radiação, Portugal

Universidade de Coimbra Centro de Neurociências e Biologia Celular, Portugal
Fundação para a Ciência e a Tecnologia
Ongoing
Outputs

Publications

Book chapter
  1. Barbara Gomes; Joachim Cohen; Luc Deliens; Irene J. Higginson. "International trends in circumstances of death and dying among older people". edited by Merryn Gott; Ingleton, {Christine, 3-18. Oxford University Press, 2011.
Dictionary entry
  1. Barbara Gomes; Irene J. Higginson; Elizabeth Anne Davies; Gomes, B.; Higginson, I.J.; Davies, E.. "Hospice and palliative care". In International Encyclopedia of Public Health, edited by K Heggenhougen; {Quah. Academic Press, 2008. https://kclpure.kcl.ac.uk/portal/en/publications/9b73758a-2a29-4107-b6b7-d2000734627b.
    10.1016/B978-012373960-5.00518-9
Journal article
  1. Brito MF; Selman LE; Calanzani N; Koffman J; Higginson IJ; Gomes B. "Caregiving burden, receipt of palliative care, and the use of bereavement support: secondary analysis of population-based data.". BMC palliative care (2025): http://europepmc.org/abstract/med/40176010.
    10.1186/s12904-025-01705-6
  2. Cardoso AL; Del Nero LG; Martins-Branco D; Lacerda A; Gomes B; Lopes S. "Aggressiveness of Care at the End of Life of Children Dying with Cancer in Public Hospitals-A Nationwide Retrospective Cohort Study.". Journal of palliative medicine (2024): http://europepmc.org/abstract/med/39636680.
    10.1089/jpm.2024.0179
  3. Smets T; Pivodic L; Miranda R; Van Campe F; Vinckier C; Pesut B; Duggleby W; et al. "Implementation and evaluation of a navigation program for people with cancer in old age and their family caregivers: study protocol for the EU NAVIGATE International Pragmatic Randomized Controlled Trial.". Trials (2024): http://europepmc.org/abstract/med/39605055.
    10.1186/s13063-024-08633-5
  4. Miranda R; Smets T; Pivodic L; Chambaere K; Pesut B; Duggleby W; Onwuteaka-Philipsen BD; et al. "Adapting, implementing and evaluating a navigation intervention for older people with cancer and their family caregivers in six countries in Europe: the Horizon Europe-funded EU NAVIGATE project.". Palliative care and social practice (2024): http://europepmc.org/abstract/med/39435050.
    10.1177/26323524241288873
  5. Mitsunori Miyashita; Catherine Evans; Deokee Yi; Barbara Gomes. "Symptom burden, service use and care dissatisfaction among older adults with cancer, cardiovascular disease, respiratory disease, dementia and neurological disease during the last 3 months before death: A pooled analysis of mortality follow-back surveys". Palliative Medicine 38 5 (2024): 582-592. https://kclpure.kcl.ac.uk/portal/en/publications/46159913-cf1a-43d5-a5eb-a75c79dcb27a.
    10.1177/02692163241246049
  6. Alves S; Duarte N; Gomes B. "Forecasted Dementia Prevalence in Portugal (2020-2080).". Journal of geriatric psychiatry and neurology (2024): http://europepmc.org/abstract/med/38436576.
    10.1177/08919887241237220
  7. Namukwaya E; de Sousa AB; Lopes S; Touwen DP; van der Steen JT; Bélanger E; Brooks J; et al. "EOLinPLACE: an international research project to reform the way dying places are classified and understood.". Palliative care and social practice (2024): http://europepmc.org/abstract/med/38357678.
    10.1177/26323524231222498
  8. Pinto S; Lopes S; de Sousa AB; Delalibera M; Gomes B. "Patient and Family Preferences About Place of End-of-Life Care and Death: An Umbrella Review.". Journal of pain and symptom management (2024): http://europepmc.org/abstract/med/38237790.
    10.1016/j.jpainsymman.2024.01.014
  9. Seiça Cardoso C; Prazeres F; Oliveiros B; Nunes C; Simões P; Aires C; Rita P; et al. "Feasibility and effectiveness of a two-tiered intervention involving training and a new consultation model for patients with palliative care needs in primary care: A before-after study.". Palliative medicine (2024): http://europepmc.org/abstract/med/38226491.
    10.1177/02692163231219682
  10. Lopes S; Bruno de Sousa A; Delalibera M; Namukwaya E; Cohen J; Gomes B. "The rise of home death in the COVID-19 pandemic: a population-based study of death certificate data for adults from 32 countries, 2012-2021.". EClinicalMedicine (2024): http://europepmc.org/abstract/med/38545089.
    10.1016/j.eclinm.2023.102399
  11. Seiça Cardoso C; Rita Matos J; Prazeres F; Gomes B. "Non-pharmacological interventions in primary care to improve the quality of life of older patients with palliative care needs: a systematic review of randomised controlled trials.". BMJ open (2023): http://europepmc.org/abstract/med/38070901.
    10.1136/bmjopen-2023-073950
  12. Duarte N; Alves S; Gomes B. "Evaluation of a Dementia Training Course for Staff of a Center of Dementia Care.". Dementia and geriatric cognitive disorders (2023): http://europepmc.org/abstract/med/37257431.
    10.1159/000529856
  13. Pinto S; Lopes S; Bruno de Sousa A; Gomes B. "Preferences about place of end-of-life care and death of patients with life-threatening illnesses and their families: a protocol for an umbrella review.". BMJ open (2023): http://europepmc.org/abstract/med/36990480.
    10.1136/bmjopen-2022-066374
  14. Nogueira A; Correia D; Loureiro M; Gomes B; Cancelinha C. "The needs of children receiving end of life care and the impact of a paediatric palliative care team: a retrospective cohort study.". European journal of pediatrics (2022): http://europepmc.org/abstract/med/36445514.
    10.1007/s00431-022-04683-6
  15. Seiça Cardoso C; Monteiro-Soares M; Rita Matos J; Prazeres F; Martins C; Gomes B. "Non-pharmacological interventions in primary care to improve the quality of life of older patients with palliative care needs: a systematic review protocol.". BMJ open (2022): http://europepmc.org/abstract/med/35508348.
    10.1136/bmjopen-2021-060517
  16. Antunes A; Gomes B; Campos L; Coelho M; Lopes S. "Emergency department and hospital utilisation and expenditures in the last year of life: retrospective chronic diseases cohort study.". BMJ supportive & palliative care (2021): http://europepmc.org/abstract/med/34819328.
    10.1136/bmjspcare-2021-003103
  17. de Oliveira R; Lobato CB; Maia-Moço L; Santos M; Neves S; Matos MF; Cardoso R; et al. "Palliative medicine in the emergency department: symptom control and aggressive care.". BMJ supportive & palliative care (2021): http://europepmc.org/abstract/med/34470770.
    10.1136/bmjspcare-2021-003332
  18. Cardoso CS; Prazeres F; Xavier B; Gomes B. "Family Physicians' Perspectives on Their Role in Palliative Care: A Double Focus Group in Portugal.". International journal of environmental research and public health (2021): http://europepmc.org/abstract/med/34299732.
    10.3390/ijerph18147282
  19. Evans CJ; Bone AE; Yi D; Gao W; Morgan M; Taherzadeh S; Maddocks M; et al. "Community-based short-term integrated palliative and supportive care reduces symptom distress for older people with chronic noncancer conditions compared with usual care: A randomised controlled single-blind mixed method trial.". International journal of nursing studies (2021): http://europepmc.org/abstract/med/34146843.
    10.1016/j.ijnurstu.2021.103978
  20. Martins-Branco D; Lopes S; Canario R; Freire J; Feio M; Ferraz-Goncalves J; Sousa G; Lunet N; Gomes B. "Factors associated with the aggressiveness of care at the end of life for patients with cancer dying in hospital: a nationwide retrospective cohort study in mainland Portugal.". ESMO open (2020): http://europepmc.org/abstract/med/33214230.
    10.1136/esmoopen-2020-000953
  21. Costa AR; Lunet N; Martins-Branco D; Gomes B; Lopes S. "Hospitalizations at the End of Life Among Chronic Obstructive Pulmonary Disease and Lung Cancer Patients: A Nationwide Study.". Journal of pain and symptom management (2020): http://europepmc.org/abstract/med/33221384.
    10.1016/j.jpainsymman.2020.11.015
  22. Sleeman KE; Gomes B; de Brito M; Shamieh O; Harding R. "The burden of serious health-related suffering among cancer decedents: Global projections study to 2060.". Palliative medicine (2020): http://europepmc.org/abstract/med/32945226.
    10.1177/0269216320957561
  23. Ribeiro C; Santos R; Correia P; Maddocks M; Gomes B. "Resistance training in advanced cancer: a phase II safety and feasibility trial-home versus hospital.". BMJ supportive & palliative care (2020): http://europepmc.org/abstract/med/32792420.
    10.1136/bmjspcare-2020-002230
  24. Gomes, Barbara; de Brito, Maja; de Lacerda, Ana Forjaz; Soares, Duarte. "Portugal needs to revolutionise end-of-life care". The Lancet 395 10223 (2020): 495-496. http://dx.doi.org/10.1016/s0140-6736(19)32969-1.
    10.1016/s0140-6736(19)32969-1
  25. Finucane AM; Bone AE; Evans CJ; Gomes B; Meade R; Higginson IJ; Murray SA. "The impact of population ageing on end-of-life care in Scotland: projections of place of death and recommendations for future service provision.". BMC palliative care (2019): http://europepmc.org/abstract/med/31829177.
    10.1186/s12904-019-0490-x
  26. Barbara Gomes. "Do patients, families, and healthcare teams benefit from the integration of palliative care in burn intensive care units? Results from a systematic review with narrative synthesis". Palliative Medicine (2019): http://dx.doi.org/10.1177/0269216319862160.
    10.1177/0269216319862160
  27. Katherine Sleeman; Maja de Brito; Simon Noah Etkind; Kennedy Nkhoma; Ping Guo; Irene J. Higginson; Barbara Gomes; Richard Harding. "The escalating global burden of serious health-related suffering". The Lancet Global Health 7 7 (2019): e883-e892. https://kclpure.kcl.ac.uk/portal/en/publications/the-escalating-global-burden-of-serious-healthrelated-suffering(647e9b63-9a72-498c-8496-0392eb6e0e06).html.
    10.1016/S2214-109X(19)30172-X
  28. Barbara Gomes. "Insights into the factors associated with achieving the preference of home death in terminal cancer: A national population-based study". Palliative and Supportive Care (2018): http://dx.doi.org/10.1017/s1478951517000876.
    10.1017/s1478951517000876
  29. Anna E Bone; Catherine Evans; Simon Noah Etkind; Katherine Sleeman; Barbara Gomes; Melissa Aldridge; Jeff Keep; Julia Verne; Irene J Higginson. "Factors associated with older people's emergency department attendance towards the end of life". European journal of public health 29 1 (2018): 67-74. https://kclpuredev.kcl.ac.uk/portal/en/publications/factors-associated-with-older-peoples-emergency-department-attendance-towards-the-end-of-life(20db4ff9-e217-49fc-b209-b7617abad13b).html.
    10.1093/eurpub/cky241
  30. Malva JO; Amado A; Rodrigues A; Mota-Pinto A; Cardoso AF; Teixeira AM; Todo-Bom A; et al. "The Quadruple Helix-Based Innovation Model of Reference Sites for Active and Healthy Ageing in Europe: The Ageing@Coimbra Case Study.". Frontiers in medicine (2018): http://europepmc.org/abstract/med/29868588.
    10.3389/fmed.2018.00132
  31. Barbara Gomes. "Risk factors for hospital death in conditions needing palliative care: Nationwide population-based death certificate study". Palliative Medicine (2018): http://dx.doi.org/10.1177/0269216317743961.
    10.1177/0269216317743961
  32. Anna E Bone; Barbara Gomes; Simon Noah Etkind; Julia Verne; Fliss Murtagh; Catherine J Evans; Irene J. Higginson. "What is the impact of population ageing on the future provision of end-of-life care?". Palliative Medicine 32 2 (2018): 329-336. https://kclpureuat.kcl.ac.uk/portal/en/publications/what-is-the-impact-of-population-ageing-on-the-future-provision-of-endoflife-care(d053aab5-a7e1-4774-8683-edd52fb1450f).html.
    10.1177/0269216317734435
  33. Barbara Gomes. "Which patients with advanced respiratory disease die in hospital? A 14-year population-based study of trends and associated factors". BMC Medicine (2017): http://dx.doi.org/10.1186/s12916-016-0776-2.
    10.1186/s12916-016-0776-2
  34. Barbara Gomes. "Trends in cause and place of death for children in Portugal (a European country with no Paediatric palliative care) during 1987–2011: a population-based study". BMC Pediatrics (2017): http://dx.doi.org/10.1186/s12887-017-0970-1.
    10.1186/s12887-017-0970-1
  35. Barbara Gomes; Maja de Brito; Vera P Sarmento; Deokhee Yi; Duarte Soares; Jacinta Fernandes; Bruno Fonseca; et al. "Valuing attributes of home palliative care with service users". Journal of pain and symptom management (2017): https://kclpureuat.kcl.ac.uk/portal/en/publications/valuing-attributes-of-home-palliative-care-with-service-users(eaa50e3a-3262-4008-b50c-3d5767756345).html.
    10.1016/j.jpainsymman.2017.05.005
  36. Simon Noah Etkind; A. E. Bone; Barbara Gomes; N. Lovell; Catherine Evans; Irene J. Higginson; Fliss Murtagh. "How many people will need palliative care in 2040? Past trends, future projections and implications for services". BMC Medicine 15 1 (2017): https://kclpureuat.kcl.ac.uk/portal/en/publications/how-many-people-will-need-palliative-care-in-2040-past-trends-future-projections-and-implications-for-services(96674b16-7b88-4e98-911e-732a5634aa50).html.
    10.1186/s12916-017-0860-2
  37. Sarmento VP; Gysels M; Higginson IJ; Gomes B. "Home palliative care works: but how? A meta-ethnography of the experiences of patients and family caregivers.". (2017): http://europepmc.org/abstract/med/28232515.
    10.1136/bmjspcare-2016-001141
  38. Bone AE; Gao W; Gomes B; Sleeman KE; Maddocks M; Wright J; Yi D; et al. "Factors Associated with Transition from Community Settings to Hospital as Place of Death for Adults Aged 75 and Older: A Population-Based Mortality Follow-Back Survey.". (2016): http://europepmc.org/abstract/med/27610598.
    10.1111/jgs.14442
  39. da Silva Soares D; Nunes CM; Gomes B. "Effectiveness of Emergency Department Based Palliative Care for Adults with Advanced Disease: A Systematic Review.". (2016): http://europepmc.org/abstract/med/27115914.
    10.1089/jpm.2015.0369
  40. McLean S; Gomes B; Higginson IJ. "The intensity of caregiving is a more important predictor of adverse bereavement outcomes for adult-child than spousal caregivers of patients who die of cancer.". (2016): http://europepmc.org/abstract/med/27139519.
    10.1002/pon.4132
  41. Sarmento VP; Higginson IJ; Ferreira PL; Gomes B. "Past trends and projections of hospital deaths to inform the integration of palliative care in one of the most ageing countries in the world.". (2016): http://europepmc.org/abstract/med/26163531.
    10.1177/0269216315594974
  42. Henson LA; Gomes B; Koffman J; Daveson BA; Higginson IJ; Gao W; BuildCARE. "Factors associated with aggressive end of life cancer care.". (2016): http://europepmc.org/abstract/med/26253587.
    10.1007/s00520-015-2885-4
  43. Pivodic L; Harding R; Calanzani N; McCrone P; Hall S; Deliens L; Higginson IJ; Gomes B; EURO IMPACT. "Home care by general practitioners for cancer patients in the last 3 months of life: An epidemiological study of quality and associated factors.". (2016): http://europepmc.org/abstract/med/26036688.
    10.1177/0269216315589213
  44. Calanzani N; Higginson IJ; Koffman J; Gomes B. "Factors Associated with Participation, Active Refusals and Reasons for Not Taking Part in a Mortality Followback Survey Evaluating End-of-Life Care.". (2016): http://europepmc.org/abstract/med/26745379.
    10.1371/journal.pone.0146134
  45. De Brito, M.; Fonseca, B.; Gomes, B.. "The clinical academic palliative care forum gives a boost to local research in northern Portugal". European Journal of Palliative Care 23 2 (2016): 90-93. http://www.scopus.com/inward/record.url?eid=2-s2.0-84961262644&partnerID=MN8TOARS.
  46. Fegg M; Lehner M; Simon ST; Gomes B; Higginson IJ; Bausewein C. "[What influences end-of-life decisions? Results of a representative German survey].". (2015): http://europepmc.org/abstract/med/26272670.
    10.1007/s00103-015-2219-1
  47. de Brito M; Gomes B. "Non-cancer palliative care in the community needs greater interprofessional collaboration to maintain coordinated care and manage uncertainty.". (2015): http://europepmc.org/abstract/med/25700028.
    10.1136/eb-2014-102029
  48. Gomes B. "Palliative care: if it makes a difference, why wait?". (2015): http://europepmc.org/abstract/med/25800757.
    10.1200/JCO.2014.60.5386
  49. Catherine Evans; a. Bone; Deokhee Yi; Barbara Gomes; Matthew Maddocks; Katherine Sleeman; J. Wright; P. Mc Crone; Irene J. Higginson. "Factors Associated With End of Life Transition for Older Adults Living At Home: Analysis of Carers' Post-Bereavement Survey". BMJ Supportive & Palliative Care 5 1 (2015): 116-116. https://kclpureuat.kcl.ac.uk/portal/en/publications/factors-associated-with-end-of-life-transition-for-older-adults-living-at-home-analysis-of-carers-postbereavement-survey(06e9d576-fae3-4038-8847-2379710ae295).html.
    10.1136/bmjspcare-2014-000838.37
  50. Gomes B; Calanzani N; Koffman J; Higginson IJ. "Is dying in hospital better than home in incurable cancer and what factors influence this? A population-based study.". (2015): http://europepmc.org/abstract/med/26449231.
    10.1186/s12916-015-0466-5
  51. Gomes B; Calanzani N; Higginson IJ. "Benefits and costs of home palliative care compared with usual care for patients with advanced illness and their family caregivers.". (2014): http://europepmc.org/abstract/med/24618968.
    10.1001/jama.2014.553
  52. Khan SA; Gomes B; Higginson IJ. "End-of-life care--what do cancer patients want?". (2014): http://europepmc.org/abstract/med/24281062.
    10.1038/nrclinonc.2013.217
  53. Downing J; Gomes B; Gikaara N; Munene G; Daveson BA; Powell RA; Mwangi-Powell FN; et al. "Public preferences and priorities for end-of-life care in Kenya: a population-based street survey.". (2014): http://europepmc.org/abstract/med/24529217.
    10.1186/1472-684X-13-4
  54. Calanzani N; Moens K; Cohen J; Higginson IJ; Harding R; Deliens L; Toscani F; et al. "Choosing care homes as the least preferred place to die: a cross-national survey of public preferences in seven European countries.". (2014): http://europepmc.org/abstract/med/25927972.
    10.1186/1472-684X-13-48
  55. Higginson IJ; Sarmento VP; Calanzani N; Benalia H; Gomes B. "Dying at home - is it better: A narrative appraisal of the state of the science.". (2013): http://europepmc.org/abstract/med/23698451.
    10.1177/0269216313487940
  56. Higginson IJ; Gomes B; Calanzani N; Gao W; Bausewein C; Daveson BA; Deliens L; et al. "Priorities for treatment, care and information if faced with serious illness: A comparative population-based survey in seven European countries.". (2013): http://europepmc.org/abstract/med/23703237.
    10.1177/0269216313488989
  57. Daveson BA; Alonso JP; Calanzani N; Ramsenthaler C; Gysels M; Antunes B; Moens K; et al. "Learning from the public: citizens describe the need to improve end-of-life care access, provision and recognition across Europe.". (2013): http://europepmc.org/abstract/med/23487548.
    10.1093/eurpub/ckt029
  58. Gomes B; Calanzani N; Curiale V; McCrone P; Higginson IJ. "Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers.". (2013): http://europepmc.org/abstract/med/23744578.
    10.1002/14651858.CD007760.pub2
  59. Gomes B; Sarmento VP; Ferreira PL; Higginson IJ. "[Epidemiological study of place of death in Portugal in 2010 and comparison with the preferences of the Portuguese population].". (2013): http://europepmc.org/abstract/med/24016640.
  60. Gomes, B.; McCrone, P.; Hall, S.; Riley, J.; Koffman, J.; Higginson, I.J.. "Cognitive interviewing of bereaved relatives to improve the measurement of health outcomes and care utilisation at the end of life in a mortality followback survey". Supportive Care in Cancer 21 10 (2013): 2835-2844. http://www.scopus.com/inward/record.url?eid=2-s2.0-84884222759&partnerID=MN8TOARS.
    10.1007/s00520-013-1848-x
  61. Harding, R.; Simms, V.; Calanzani, N.; Higginson, I.J.; Hall, S.; Gysels, M.; Meñaca, A.; et al. "If you had less than a year to live, would you want to know? A seven-country European population survey of public preferences for disclosure of poor prognosis". Psycho-Oncology 22 10 (2013): 2298-2305. http://www.scopus.com/inward/record.url?eid=2-s2.0-84885306729&partnerID=MN8TOARS.
    10.1002/pon.3283
  62. Bausewein, C.; Calanzani, N.; Daveson, B.A.; Simon, S.T.; Ferreira, P.L.; Higginson, I.J.; Bechinger-English, D.; et al. "'Burden to others' as a public concern in advanced cancer: A comparative survey in seven European countries". BMC Cancer 13 (2013): http://www.scopus.com/inward/record.url?eid=2-s2.0-84874673492&partnerID=MN8TOARS.
    10.1186/1471-2407-13-105
  63. Gomes, B.; Calanzani, N.; Gysels, M.; Hall, S.; Higginson, I.J.. "Heterogeneity and changes in preferences for dying at home: A systematic review". BMC Palliative Care 12 1 (2013): http://www.scopus.com/inward/record.url?eid=2-s2.0-84873719806&partnerID=MN8TOARS.
    10.1186/1472-684X-12-7
  64. Daveson, B.A.; Bausewein, C.; Murtagh, F.E.M.; Calanzani, N.; Higginson, I.J.; Harding, R.; Cohen, J.; et al. "To be involved or not to be involved: A survey of public preferences for self-involvement in decision-making involving mental capacity (competency) within Europe". Palliative Medicine 27 5 (2013): 418-427. http://www.scopus.com/inward/record.url?eid=2-s2.0-84877758982&partnerID=MN8TOARS.
    10.1177/0269216312471883
  65. Gomes, B.. "Health metrics: Standardize records of place of death". Nature 495 7442 (2013): http://www.scopus.com/inward/record.url?eid=2-s2.0-84875633819&partnerID=MN8TOARS.
    10.1038/495449c
  66. Powell, R.A.; Namisango, E.; Gikaara, N.; Moyo, S.; Mwangi-Powell, F.N.; Gomes, B.; Harding, R.. "Public Priorities and Preferences for End-of-Life Care in Namibia". Journal of Pain and Symptom Management (2013): http://www.scopus.com/inward/record.url?eid=2-s2.0-84880138945&partnerID=MN8TOARS.
    10.1016/j.jpainsymman.2013.04.004
  67. Sleeman, K.E.; Murtagh, F.E.M.; Gomes, B.. "Neuberger review - Spotlight on care of the dying". European Journal of Palliative Care 20 5 (2013): http://www.scopus.com/inward/record.url?eid=2-s2.0-84883775356&partnerID=MN8TOARS.
  68. Gomes, B.; Higginson, I.J.. "Evidence on home palliative care: Charting past, present, and future at the cicely saunders institute - WHO collaborating centre for palliative care, policy and rehabilitation". Progress in Palliative Care 21 4 (2013): 204-213. http://www.scopus.com/inward/record.url?eid=2-s2.0-84881628530&partnerID=MN8TOARS.
    10.1179/1743291X13Y.0000000065
  69. Gomes, B.. "Enabling patients to die where they wish with the best possible care". European Journal of Palliative Care 20 5 (2013): http://www.scopus.com/inward/record.url?eid=2-s2.0-84883790995&partnerID=MN8TOARS.
  70. Sleeman, K.E.; Gomes, B.; Higginson, I.J.. "Research into end-of-life cancer care - Investment is needed". The Lancet 379 9815 (2012): http://www.scopus.com/inward/record.url?eid=2-s2.0-84856830972&partnerID=MN8TOARS.
    10.1016/S0140-6736(12)60230-X
  71. Lopes Ferreira, P.; Antunes, B.; Barros Pinto, A.; Gomes, B.. "End-of-life care: Portugal in the European project PRISMA | Cuidados de fim de vida: Portugal no projeto europeu PRISMA". Revista Portuguesa de Saude Publica 30 1 (2012): 62-70. http://www.scopus.com/inward/record.url?eid=2-s2.0-84862121580&partnerID=MN8TOARS.
    10.1016/j.rpsp.2012.04.001
  72. Koffman, J.; Higginson, I.J.; Hall, S.; Riley, J.; McCrone, P.; Gomes, B.. "Bereaved relatives' views about participating in cancer research". Palliative Medicine 26 4 (2012): 379-383. http://www.scopus.com/inward/record.url?eid=2-s2.0-84861831183&partnerID=MN8TOARS.
    10.1177/0269216311405091
  73. Gomes, B.; Calanzani, N.; Higginson, I.J.. "Reversal of the British trends in place of death: Time series analysis 2004-2010". Palliative Medicine 26 2 (2012): 102-107. http://www.scopus.com/inward/record.url?eid=2-s2.0-84857262553&partnerID=MN8TOARS.
    10.1177/0269216311432329
  74. Simon, S.T.; Gomes, B.; Koeskeroglu, P.; Higginson, I.J.; Bausewein, C.. "Population, mortality and place of death in Germany (1950-2050) - Implications for end-of-life care in the future". Public Health 126 11 (2012): 937-946. http://www.scopus.com/inward/record.url?eid=2-s2.0-84870325193&partnerID=MN8TOARS.
    10.1016/j.puhe.2012.06.014
  75. Gomes, B.; Higginson, I.J.; Calanzani, N.; Cohen, J.; Deliens, L.; Daveson, B.A.; Bechinger-English, D.; et al. "Preferences for place of death if faced with advanced cancer: A population survey in England, Flanders, Germany, Italy, The Netherlands, Portugal and Spain". Annals of Oncology 23 8 (2012): 2006-2015. http://www.scopus.com/inward/record.url?eid=2-s2.0-84862893226&partnerID=MN8TOARS.
    10.1093/annonc/mdr602
  76. Downing, J.; Gikaara, N.; Gomes, B.; Daveson, B.A.; Higginson, I.J.; Harding, R.. "Public opinion on preferences and priorities for end-of-life care in sub-Saharan Africa: piloting a novel method of street surveying". BMJ supportive & palliative care 2 1 (2012): 72-74. http://www.scopus.com/inward/record.url?eid=2-s2.0-84895423803&partnerID=MN8TOARS.
    10.1136/bmjspcare-2011-000112
  77. Beynon, T.; Gomes, B.; Murtagh, F.E.M.; Glucksman, E.; Parfitt, A.; Burman, R.; Edmonds, P.; et al. "How common are palliative care needs among older people who die in the emergency department?". Emergency Medicine Journal 28 6 (2011): 491-495. http://www.scopus.com/inward/record.url?eid=2-s2.0-79956341677&partnerID=MN8TOARS.
    10.1136/emj.2009.090019
  78. Daveson, B.A.; Bechinger-English, D.; Bausewein, C.; Simon, S.T.; Harding, R.; Higginson, I.J.; Gomes, B.. "Constructing understandings of end-of-life care in Europe: A qualitative study involving cognitive interviewing with implications for cross-national surveys". Journal of Palliative Medicine 14 3 (2011): 343-349. http://www.scopus.com/inward/record.url?eid=2-s2.0-79952301716&partnerID=MN8TOARS.
    10.1089/jpm.2010.0348
  79. Gomes, B.; McCrone, P.; Hall, S.; Koffman, J.; Higginson, I.J.. "Variations in the quality and costs of end-of-life care, preferences and palliative outcomes for cancer patients by place of death: The QUALYCARE study". BMC Cancer 10 (2010): http://www.scopus.com/inward/record.url?eid=2-s2.0-77955069387&partnerID=MN8TOARS.
    10.1186/1471-2407-10-400
  80. Higginson, I.J.; Hall, S.; Koffman, J.; Riley, J.; Gomes, B.. "Time to get it right: Are preferences for place of death more stable than we think?". Palliative Medicine 24 3 (2010): 352-353. http://www.scopus.com/inward/record.url?eid=2-s2.0-77950619504&partnerID=MN8TOARS.
    10.1177/0269216309360489
  81. Gomes, B.; Harding, R.; Foley, K.M.; Higginson, I.J.. "Optimal Approaches to the Health Economics of Palliative Care: Report of an International Think Tank". Journal of Pain and Symptom Management 38 1 (2009): 4-10. http://www.scopus.com/inward/record.url?eid=2-s2.0-67650165090&partnerID=MN8TOARS.
    10.1016/j.jpainsymman.2009.04.008
  82. Gomes, B.; Higginson, I.J.; McCrone, P.. "Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers". Cochrane Database of Systematic Reviews 2 (2009): http://www.scopus.com/inward/record.url?eid=2-s2.0-70349149093&partnerID=MN8TOARS.
    10.1002/14651858.CD007760
  83. Harding, R.; Gomes, B.; Foley, K.M.; Higginson, I.J.. "Research Priorities in Health Economics And Funding for Palliative Care: Views of an International Think Tank". Journal of Pain and Symptom Management 38 1 (2009): 11-14. http://www.scopus.com/inward/record.url?eid=2-s2.0-67650187931&partnerID=MN8TOARS.
    10.1016/j.jpainsymman.2009.04.013
  84. Gomes, B.; Higginson, I.J.. "Where people die (1974-2030): Past trends, future projections and implications for care". Palliative Medicine 22 1 (2008): 33-41. http://www.scopus.com/inward/record.url?eid=2-s2.0-40449090214&partnerID=MN8TOARS.
    10.1177/0269216307084606
  85. Solano, J.P.; Gomes, B.; Higginson, I.J.. "A comparison of symptom prevalence in far advanced cancer, AIDS, heart disease, chronic obstructive pulmonary disease and renal disease". Journal of Pain and Symptom Management 31 1 (2006): 58-69. http://www.scopus.com/inward/record.url?eid=2-s2.0-31344445894&partnerID=MN8TOARS.
    10.1016/j.jpainsymman.2005.06.007
  86. Gomes, B.; Higginson, I.J.. "Factors influencing death at home in terminally ill patients with cancer: Systematic review". British Medical Journal 332 7540 (2006): 515-518. http://www.scopus.com/inward/record.url?eid=2-s2.0-33644917988&partnerID=MN8TOARS.
    10.1136/bmj.38740.614954.55
  87. Kabengele Mpinga, E.; Pennec, S.; Gomes, B.; Cohen, J.; Higginson, I.J.; Wilson, D.; Rapin, C.-H.. "First international symposium on places of death: An agenda for the 21 st century". Journal of Palliative Care 22 4 (2006): 293-296. http://www.scopus.com/inward/record.url?eid=2-s2.0-33846142846&partnerID=MN8TOARS.
  88. Gomes, B.; Higginson, I.J.. "Home or hospital? Choices at the end of life". Journal of the Royal Society of Medicine 97 9 (2004): 413-414. http://www.scopus.com/inward/record.url?eid=2-s2.0-4644309181&partnerID=MN8TOARS.
    10.1258/jrsm.97.9.413
Preprint
  1. Nogueira A; Correia D; Loureiro M; Gomes B; Cancelinha C. "Complex Chronic Disease in Pediatrics – Needs in The Last Year of Life". 2022. http://europepmc.org/abstract/PPR/PPR448974.
    10.21203/rs.3.rs-1284640/v1
Report
  1. Barbara Gomes; Vera Paiva Brandao De Napoles Sarmento; Pedro Lopes Ferreira; Irene J. Higginson. 2013. Preferências e Locais de Morte. https://kclpureuat.kcl.ac.uk/portal/en/publications/preferencias-e-locais-de-morte(60d0516a-8347-4e81-bd63-48bb9436047d).html.
  2. Natalia Monteiro Calanzani; Irene J. Higginson; Barbara Gomes. 2013. Current and future needs for hospice care. https://kclpureuat.kcl.ac.uk/portal/en/publications/current-and-future-needs-for-hospice-care(269cdc73-1222-463b-84f5-53d74c638376).html.
  3. Barbara Gomes; Natalia Monteiro Calanzani; Irene J. Higginson. 2011. Local preferences and place of death in regions within England. https://kclpureuat.kcl.ac.uk/portal/en/publications/local-preferences-and-place-of-death-in-regions-within-england(d221b376-2fe5-4cfd-86ee-c772ced0989a).html.
Activities

Supervision

Thesis Title
Role 		Degree Subject (Type)
Institution / Organization
2023 - Current Variations in the use of the Emergency Department at the end of life
Supervisor
 Health Sciences (PhD)
Universidade de Coimbra Faculdade de Medicina, Portugal
2023 - Current Variability in the experiences and effects of navigation interventions in cancer
Supervisor
 Health Sciences (PhD)
Universidade de Coimbra Faculdade de Medicina, Portugal
2023 - Current Towards an international classification of place of death: relevance, meaning and applicability across countries
Supervisor
 Health Sciences (PhD)
Universidade de Coimbra Faculdade de Medicina, Portugal
2023 - Current Nursing interventions in palliative care: contributions to the development of a model of advanced practice
Co-supervisor
 Nursing Sciences (PhD)
Universidade do Porto Instituto de Ciências Biomédicas Abel Salazar, Portugal
2023 - Current Impact of transmural pediatric palliative care in the utilisation of hospital services
Co-supervisor
 Palliative Care (PhD)
Universidade do Porto Faculdade de Medicina, Portugal
2018 - Current Development and evaluation of a fast-track line for patients with palliative care needs
Co-supervisor
 Palliative Care (PhD)
Universidade do Porto Faculdade de Medicina, Portugal
2017 - Current Development and evaluation of an online multidisciplinary lifestyle intervention for cancer patients
Supervisor
 Health Sciences (PhD)
Universidade de Coimbra Faculdade de Medicina, Portugal
2017 - Current Variations in the access and outcomes of bereavement support for family carers of cancer patients
Supervisor
 Health Sciences (PhD)
Universidade de Coimbra Faculdade de Medicina, Portugal
2019 - 2023 Evaluation of a complex intervention involving training and a new consultation model for patients with palliative care needs in primary care
Supervisor
 Health Sciences (PhD)
Universidade de Coimbra Faculdade de Medicina, Portugal
Distinctions

Award

2018 Visionary in Palliative Care
Portuguese Association for Palliative Care, Portugal
2013 2nd Prize Early Researcher Award
European Association for Palliative Care, Belgium
2006 Academic Prize for Excellence, UK (best MSc dissertation in Palliative Care at King's College London)
King's College London, United Kingdom

Other distinction

2024 Fifth most cited article of the journal Palliative Medicine, updated in 2024 (Top in field of Palliative Care; IF: 4.4 | Ranking: Health Care Sciences & Services 16 out of 106 | Medicine, General & Internal 35 out of 169)
2014 Impact case study about my research on where people die and meeting preferences graded 84% for world-leading (top mark) in 2014 UK Research Excellence Framework