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Cláudia de Freitas is a social scientist at the Institute of Public Health, University of Porto. She works at the intersection of Sociology of Health, STS and Critical Public Health. Her main focus is on participation by traditionally under-served groups in health decision-making (migrants, ethnic minorities, people living with rare genetic diseases and infertility). She is also interested in how lay people can influence the development of responsive health policy, care and research. Cláudia coordinates the Research Lab Public and Patient Involvement in Health, under the associate Laboratory for Integrative and Translational Research in Population Health (ITR). She leads a project on participatory health data governance (DATAGov) and she is country co-lead of the Your DNA, Your Say project. Cláudia is technical advisor of the University of Limerick's WHO Collaborating Centre for Migrants Involvement in Health Research and she was involved in both rounds of evaluation of the Migrant Integration Policy Index (MIPEX) - Health Indicator for Portugal (2015, 2020). Cláudia is also invited Assistant Professor at University of Porto Medical School and lectures at the University of Seville, Spain. She serves as Associate Editor of the journal Frontiers in Sociology - Medical Sociology.
Identification

Personal identification

Full name
Cláudia de Freitas

Citation names

  • De Freitas, Cláudia

Author identifiers

Ciência ID
9D13-C4C1-0CC4
ORCID iD
0000-0002-1828-8642

Email addresses

  • claudia.defreitas@ispup.up.pt (Professional)
  • c_defreitas@med.up.pt (Professional)

Websites

  • https://ispup.up.pt/pessoas/cludia-de-freitas/?lang=en (Professional)

Knowledge fields

  • Social Sciences - Sociology - Sociology
  • Medical and Health Sciences - Health Sciences - Social Biomedical Sciences
Education
Degree Classification
2011
Concluded
Social Sciences (Doutoramento)
Universiteit Utrecht, Netherlands
"Participation in mental health care by ethnic minority users: Case studies from the Netherlands and Brazil." (THESIS/DISSERTATION)
Approved y unanimity
2004
Concluded
Migration and Ethnic Studies (Mestrado)
Universiteit van Amsterdam, Netherlands
"Seeking the good doctor –‘when health knows no borders’. Cape Verdeans’ perceptions of health care providers in the Netherlands" (THESIS/DISSERTATION)
16,4
2001
Concluded
Psicologia (Licenciatura)
Universidade de Coimbra, Portugal
15
Affiliation

Science

Category
Host institution
Employer
2018/01 - Current Auxiliary Researcher (Research) Universidade do Porto Instituto de Saúde Pública, Portugal
2016/09 - 2017/12 Postdoc (Research) Universidade do Porto Unidade de Investigação em Epidemiologia, Portugal
2012/02 - 2016/08 Postdoc (Research) ISCTE-Instituto Universitário de Lisboa Centro de Investigação e Estudos de Sociologia, Portugal

Teaching in Higher Education

Category
Host institution
Employer
2017/09 - Current Invited Assistant Professor (University Teacher) Universidade do Porto Faculdade de Medicina, Portugal
2014/09 - Current Visiting Professor (University Teacher) Universidad de Sevilla Facultad de Psicología, Spain

Positions / Appointments

Category
Host institution
Employer
2021 - Current Coordinator of the Research Lab Public and Patient Involvement in Health Laboratory for Integrative and Translational Research in Population Health (ITR), Portugal

Others

Category
Host institution
Employer
2016/09 - Current Integrated researcher Universidade do Porto Unidade de Investigação em Epidemiologia, Portugal
2016/08 - Current Collaboratoring Researcher ISCTE-Instituto Universitário de Lisboa Centro de Investigação e Estudos de Sociologia, Portugal
2014/09 - Current Collaboratoring Researcher University of Seville - Center of Community Research and Action, Spain
2012/02 - 2016/08 Integrated Researcher ISCTE-Instituto Universitário de Lisboa Centro de Investigação e Estudos de Sociologia, Portugal
2015/05 - 2015/06 Visiting Fellow - Short-term Scientific Mission COST Action IS1103 London School of Hygiene and Tropical Medicine Faculty of Public Health and Policy, United Kingdom
2004/02 - 2011/12 Integrated Researcher Utrecht University - European Research Centre on Migration and Ethnic Relations (ERCOMER), Netherlands
2004/02 - 2011/05 PhD Candidate Universiteit Utrecht Faculteit Sociale Wetenschappen, Netherlands
2009/05 - 2009/06 Visiting Fellow - Short-term Scientific Mission COST Action IS0603 ISCTE-Instituto Universitário de Lisboa Centro de Investigação e Estudos de Sociologia, Portugal
2006/06 - 2007/06 Visiting Researcher Universidade Federal do Rio de Janeiro Escola de Serviço Social, Brazil
2002/03 - 2003/04 Junior Researcher Universiteit Utrecht Faculteit Sociale Wetenschappen, Netherlands
2000/09 - 2001/07 Intern in Clinical Psychology - Family and couple therapy Universidade de Coimbra Faculdade de Psicologia e de Ciências da Educação, Portugal
Projects

Grant

Designation Funders
2018 - Current Public and patient involvement in health data governance: a people-centred approach to data protection in genetic diseases (DATAGov)
POCI-01-0145-FEDER-032194
Principal investigator
Universidade do Porto Instituto de Saúde Pública, Portugal
Fundação para a Ciência e a Tecnologia
2018 - Current When do health inequalities start? Understanding the impact of childhood social adversity on health trajectories from birth to early adolescence (HIneC)
POCI-01-0145-FEDER-029567
Researcher
Universidade do Porto Instituto de Saúde Pública, Portugal
Fundação para a Ciência e a Tecnologia
2020 - 2020 Anonymous mobilization of the return to normality to mitigate the COVID-19 epidemic (MARÉ)
Research4Covid-19 2nd ed 613213479-344
Researcher
Universidade de Lisboa Instituto Superior Técnico, Portugal
Fundação para a Ciência e a Tecnologia
2016 - 2019 Bionetworking and citizenship in gamete donation (ENGAgED)
FCT PTDC/IVC-ESCT/6294/2014
Researcher
Universidade do Porto Instituto de Saúde Pública, Portugal
Fundação para a Ciência e a Tecnologia
2016 - 2017 Public engagement in reproductive technologies: citizen-centred care, research and innovation
SFRH/BPD/111344/2015
Post-doc Fellow
Universidade do Porto Instituto de Saúde Pública, Portugal
Fundação para a Ciência e a Tecnologia
2012 - 2016 Citizen participation in health governance in Portugal: practice-based recommendations for policy and action
SFRH/BPD/80530/2011
Post-doc Fellow
ISCTE-Instituto Universitário de Lisboa, Portugal
Fundação para a Ciência e a Tecnologia
2012 - 2014 Health and Citizenship: Gaps and needs in intercultural health care to immigrant mothers
PTDC/CS-SOC/113384/2009
Researcher
ISCTE-Instituto Universitário de Lisboa, Portugal
Fundação para a Ciência e a Tecnologia
2007 - 2011 Public health policies and therapeutic practices: suffering and treatment strategies of migrants in the Greater Lisbon area.
PTDC/ANT/65857/2006
Researcher
ISCTE-Instituto Universitário de Lisboa Centro de Estudos de Antropologia Social, Portugal
Fundação para a Ciência e a Tecnologia

Other

Designation Funders
2021 - Current Solidarity in times of a pandemic: What do people do, and why? A comparative and longitudinal qualitative study (SolPan)
NA
Other
Universität Wien Institut für Politikwissenschaft, Austria
2021 - Current Navigating Knowledge Landscapes (NKL) Research Network
NA
Other
Østofold University College – Department for Health and Social Studies, Norway
2020 - Current WHO Collaborating Center for Migrant’s Involvement in Health Research
NA
Other
The University of Limerick, Public and Patient Involvement (PPI) Research Unit, Ireland
World Health Organisation - Regional Office for Europe
2020 - Current Your DNA, Your Say. Public attitudes on the sharing of genomic information
206194/Z/17/Z
Other
Wellcome Genome Campus - Wellcome Sanger Institute, United Kingdom
Wellcome Trust
2018 - 2020 Making asylum systems work in the EU
Fundação Calouste Gulbenkian
Principal investigator
Universidade do Porto Instituto de Saúde Pública, Portugal
Fundação Calouste Gulbenkian
2018 - 2019 Provision of training for first-line health professionals and law enforcement officers working at local level with migrants and refugees and training of trainers
Chafea/2016/Health/12 EC-DG S
Other
Universidade do Porto Instituto de Saúde Pública, Portugal
European Comission - DG SANTE/ International Organization for Migration
2011 - 2016 Adapting European Health Systems to Diversity (ADAPT)
COST Action IS1103
Technical development
ISCTE-Instituto Universitário de Lisboa, Portugal
European Union Research and Technology Development Framework Programme
2006 - 2007 Transversões - Mental health, deinstitutionalization and psychosocial approaches
.
Researcher
Universidade Federal do Rio de Janeiro, Brazil
Conselho Nacional de Desenvolvimento Científico e Tecnológico
2006 - 2007 User participation in mental health care in Suriname: the implementation of a client council
.
Principal investigator
Cliëntenraad RIAGG Rijnmond , Netherlands
Riagg Rijnmond
2002 - 2003 Good practice in mental health and social care for refugees and asylum seekers
.
Researcher
Universiteit Utrecht, Netherlands
European Commission - European Refugee Fund
Outputs

Publications

Book
  1. De Freitas, Cláudia. Participation in mental health care by ethnic minority users: Case studies from the Netherlands and Brazil. Ridderkerk, Netherlands: Ridderprint BV. 2011.
  2. De Freitas, Cláudia. Em busca de um bom médico – quando a ‘saúde não tem fronteiras’. Percepções dos Cabo-verdianos sobre profissionais de saúde na Holanda. Lisboa, Portugal: Alto Comissariado para a Imigração e Minorias Étnicas (ACIME). 2006.
Book chapter
  1. De Freitas, Cláudia; Maia, Tiago. "The Portuguese asylum system: policies, challenges and ways forward.". In Asylum challenges, debates and reforms. How Germany, Poland, Portugal and Sweden developed their asylum systems since 2015., edited by De Freitas, Cláudia; Kulesa, Agnieszka; Parusel, Bernd; Thränhardt, Dietrich, 100-151. Bertelsmann Stiftung, 2021.
  2. Susana Silva; De Freitas, Cláudia; Mariana Amorim; Sara Soares; Sílvia Fraga. "COVID-19: Desafios éticos e sociais no âmbito da investigação e regulação política numa situação de emergência de saúde global". edited by Margarida Tavares; Cláudio Silva. Instituto de Saúde Pública da Universidade do Porto, 2020.
  3. Catarina Samorinha; Alicia Renedo; De Freitas, Cláudia; Susana Silva. "Cuidados centrados no paciente: O caso da investigação com recurso a embriões". In Genética e Cidadania, edited by Helena Machado, 151-170. Porto, Portugal: Edições Afrontamento, 2017.
  4. Susana Silva; Catarina Samorinha; Inês Baía; Sandra Pinto da Silva; De Freitas, Cláudia. "Genes, cidadania e participação na doação de gâmetas". In Genética e Cidadania, edited by Helena Machado, 221-240. Portugal, Portugal: Edições Afrontamento, 2017.
  5. De Freitas, Cláudia. "Cape Verdean migrants in the Netherlands: socio-demographic profile, identity and integration". In Diáspora Cabo-verdiana: Temas em debate, edited by Iolanda Évora, 142-171. Lisboa, Portugal: CEsA/ISEG, 2016.
  6. Susana Silva; Bruno Alves; Helena Machado; Catarina Samorinha; De Freitas, Cláudia. "Narrativas em torno da utilização de embriões de origem humana na investigação científica: saúde, ética e cidadania". In Antropologia da ciência e da tecnologia: Dobras reflexivas, edited by Cláudia Fonseca; Fabíola Rohden; Paula Machado; Heloísa Paim, 205-229. Porto Alegre, Brazil: Editora Sulina, 2016.
  7. De Freitas, Cláudia. "Participação em saúde: a vez e a voz dos cidadãos". In Novos temas de saúde, novas questões sociais, edited by Graça Carapinheiro; Tiago Correia, 187-194. Lisboa, Portugal: Mundos Sociais, 2015.
  8. De Freitas, Claudia. "Equidade, diversidade e participação dos cidadãos em saúde". In Saúde e cidadania: equidade nos cuidados de saúde materno-infantil em tempos de crise, edited by Beatriz Padilla; Sonia Hernandez-Plaza; Elsa Rodrigues; Alejandra Ortiz, 141-152. Braga, Portugal: CICS - Universidade do Minho, 2014.
  9. Padilla, Beatriz; Portugal, Rui; Ingleby, David; De Freitas, Claudia; Lebas, Jacques. "Health and migration in the European Union: Good practices". In Health and migration in the European Union: Better health for all in an inclusive society, edited by Ana Fernandes; José Pereira Miguel, 101-115. Lisboa, Portugal: Instituto Nacional de Saúde Doutor Ricardo Jorge, 2009.
  10. De Freitas, Claudia. "Do silêncio à participação: cabo-verdianos e saúde mental na Holanda". In Comunidade(s) cabo-verdiana(s): as múltiplas faces da imigração cabo-verdiana, edited by Pedro Góis, 207-228. Lisboa, Portugal: Observatório da Imigração, ACIDI, 2008.
  11. Beijers, Huub; De Freitas, Claudia. "‘Cape Verdeans’ pathways to health: local problems, transnational solutions’". In Transnational archipelago: Perspectives on Cape Verdean migration and diaspora, edited by Luís Batalha; Jørgen Carling, 237-254. Amsterdam, Netherlands: Amsterdam University Press, 2008.
  12. De Freitas, Claudia. "A participação e preparação prévia do usuário para situações de crise mental: a experiência holandesa do plano/cartão de crise e desafios para a sua apropriação no contexto brasileiro". In Abordagens psicossociais. Vol II: Reforma Psiquiátrica e saúde mental na ótica da cultura e das lutas populares, edited by Eduardo Mourão Vasconcelos; Alejandro Klein; Cláudia de Freitas; Maria Liana Fonseca, 142-170. São Paulo, Brazil: Huticec, 2008.
  13. Ingleby, David; Chimienti, Milena; Hatziprokopiou, Panos; Ormond, Meghan; De Freitas, Claudia. "The role of health in integration". In Social integration and mobility: education, housing and health IMISCOE Cluster B5 State of the Art Report, edited by Maria Lucinda Fonseca; Jorge Malheiros, 89-119. Lisboa, Portugal: Centro de Estudos Geográficos, 2005.
Conference abstract
  1. Ngozi Nwebonyi ; Susana Silva; Cláudia de Freitas. "Involvement in decision-making about health data sharing, access, use and reuse: the views of rare diseases patients and carers". Paper presented in IJUP - 15ª Edição do Encontro Investigação Jovem da U. Porto, Book of Abstracts Young Researchers Meeting, 2022.
    Accepted
  2. Ngozi Nwebonyi; Silva, Susana; De Freitas, Cláudia. "Getting involved in decisions about health data sharing, access, use and reuse? The views of rare disease patients". Paper presented in The 5th Global Public Health Conference, In: Book of Abstracts of the 5th Global Public Health Conference 2022, 2022.
    Published
  3. De Freitas, Cláudia; Silva, Susana; Amorim, Mariana. "Public and patient Involvement in the digitalization of healthcare, IV ISA Forum of Sociology: Challenges of the 21st century. Book of Abstracts.". 2021.
    Published
  4. De Freitas, Claudia; Silva, Susana; Machado, Helena; Baptista, Maria João; Leão Teles, E; Maia, Tiago; Amorim, Mariana. "Support for decision-making on sharing health data for research: are data counsellors relevant?". Paper presented in 14th European Public Health Conference, European Journal of Public Health, 31_suppl 3 (ckab165.166), 2021.
    10.1093/eurpub/ckab165.166
  5. De Freitas C; Silva Susana; Leão Teles E; Maia T; Amorim M. "Participation in data generation and information sharing: are patient and carers willing to engage?". Paper presented in 16th World Congress on Public Health, European Journal of Public Health, 2020.
    10.1093/eurpub/ckaa165.370
  6. De Freitas, C; Amorim, M; Leão Teles, E; Maia, T; Machado, H; Silva, S. "Public preferences for involvement in the governance of health data". Paper presented in 16th World Congress on Public Health, European Journal of Public Health, 2020.
    10.1093/eurpub/ckaa165.801
  7. Amorim M; Silva Susana; Maia T; De Freitas C. "Benefits and risks of sharing genetic data for research purposes: the views of patients and carers.". Paper presented in 16th World Congress on Public Health, European Journal of Public Health, 2020.
    10.1093/eurpub/ckaa165.365
  8. Maia, T; Silva, S; De Freitas, C. "Solidarity and reciprocity in data governance: information sharing among gamete donors and recipients". Paper presented in 12th European Public Health Conference, European Journal of Public Health, 29 (4), 2019.
    10.1093/eurpub/ckz185.648
  9. De Freitas, C; Silva, S; Maia, T; Amorim, M. "Public participation in health data governance: a scoping review". Paper presented in 12th European Public Health Conference, European Journal of Public Health, 29 (4), 2019.
    10.1093/eurpub/ckz185.647
  10. De Freitas, C. "Innovative approaches to ethical and methodological challenges in health research". Paper presented in 2nd European Congress of Qualitative Inquiry Second Edition, Book of Abstracts, Leuven, 2018.
  11. De Freitas, C; Duran, I; García-Ramírez, M.. "A multi-level advocacy framework for Roma health: a scoping review". Paper presented in 1rst World Congress on Migration, Ethnicity, Race and Health, European Journal of Public Health, 28 (1), 2018.
    10.1093/eurpub/cky048.114
  12. Escobar-Ballesta, M; García-Ramírez, M; De Freitas, C. "Roma health governance in Spain: an assessment of policy implementation". Paper presented in 1rst World Congress on Migration, Ethnicity, Race and Health, European Journal of Public Health, 28 (1), 2018.
    10.1093/eurpub/cky047.121
  13. De Freitas, C; Ingleby, D; MacFarlane, A. "Migrant and ethnic minority participation in health decision-making: achieving inclusive participatory spaces". Paper presented in 1rst World Congress on Migration, Ethnicity, Race and Health, European Journal of Public Health, 28 (1), 2018.
    10.1093/eurpub/cky049.023
  14. Sandra P Silva; De Freitas, Cláudia; Susana Silva. "Ethical and methodological challenges to public engagement in research about anonymous gamete donation: rethinking citizen science". Paper presented in International Sociological Association Conference "Democracy and Participation in the 21st Century", Book of Abstracts, Lisbon, 2017.
  15. De Freitas, C; Samorinha, C; Lisi, C. "Public involvement in health policy-making: an exclusive practice?". Paper presented in International Sociological Association Conference "Democracy and Participation in the 21st Century", Book of Abstracts, Lisbon, 2017.
  16. De Freitas, C; Samorinha, C; Ingleby, David; García-Ramírez, M. "Migrant and ethnic minority involvement in healthcare policy and community interventions: a scoping review". Paper presented in EUPHA’s 6th European Conference on Migrant and Ethnic Minority Health, Book of Abstracts, Oslo, 2016.
  17. Samorinha, C; Machado, H; De Freitas, C; Amorim, M. "A public health approach to patient-centredness in embryo research". Paper presented in 9th European Public Health Conference, European Journal of Public Health, 26 (1), 2016.
    10.1093/eurpub/ckw164.073
  18. Baía, I; Amorim, M; Susana Silva; De Freitas, C; Elisabete, A. "Parenting very preterm infants and stress in Neonatal Intensive Care Units". Paper presented in 8th European Public Health Conference, European Journal of Public Health, 25 (3), 2015.
    10.1093/eurpub/ckv170.096
  19. Vanessa Ferreira; De Freitas, C; Videira, P; Krasnewich, D; Morava, E; Silva, Susana; Jaeken, J. "Needs and opportunities from Congenital Disorders of Glycosylation: Results from the first world think tanks". Paper presented in RE(ACT) - International Congress on Research on Rare and Orphan Diseases, Molecular Syndromology 6: 327, 2015.
    10.1159/000444288
  20. De Freitas, C; Ingleby, D; García-Ramírez, M. "Levering change: barriers to and facilitators of migrant user involvement in healthcare governance". Paper presented in 5th European Conference on Migrant and Ethnic Minority Health, Granada, 2014.
    Published
  21. De Freitas, C. "Fostering inclusive citizen participation in health: the engagement of minority groups in healthcare governance". Paper presented in European Sociological Association 11th Conference, Abstracts Book, Turin, 2013.
  22. De Freitas, C. "Beyond the usual suspects: increasing the representation of disadvantaged minorities in health participatory spaces in times of crisis". Paper presented in European Sociological Association 11th Conference, Abstracts Book, Turin, 2013.
Conference paper
  1. De Freitas, Cláudia. "Do estigma à inclusão: motivações para a participação cidadã na promoção da saúde mental". Paper presented in VIII Congresso Português de Sociologia, Évora, 2014.
    Published
  2. De Freitas, Cláudia. "Oportunidades de mudança: uma voz cabo-verdiana nos cuidados de saúde mental holandeses". Paper presented in Seminário + Saúde, género e imigração, Coimbra, 2012.
    Published
Edited book
  1. De Freitas, Cláudia; Kulesa, Agnieszka; Parusel, Bernd; Thränhardt, Dietrich. Asylum challenges, debates and reforms. How Germany, Poland, Portugal and Sweden have developed their asylum systems since 2015. Gütersloh: Bertelsmann Stiftung. 2021.
  2. Vasconcelos, Eduardo Mourão; Klein, Alejandro; De Freitas, Claudia; Fonseca, Maria Liana. Abordagens psicossociais: v. II: reforma psiquiátrica e saúde mental na ótica da cultura e das lutas populares. São Paulo, Brazil: Huticec. 2008.
Journal article
  1. Nwebonyi, N; Silva, S; de Freitas, C. "Public Views About Involvement in Decision-Making on Health Data Sharing, Access, Use and Reuse: The Importance of Trust in Science and Other Institutions". Frontiers in Public Health 10 (2022): 852971.
    10.3389/fpubh.2022.852971
  2. Milne, Richard; Morley, Katherine I.; Almarri, Mohamed A.; Atutornu, Jerome; Baranova, Elena E.; Bevan, Paul; Cerezo, Maria; et al. "Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries". Genetics in Medicine (2022): http://dx.doi.org/10.1016/j.gim.2022.01.002.
    Accepted • 10.1016/j.gim.2022.01.002
  3. Silva, S; Pinto, A; De Freitas, C. "Priorizar o acesso à reprodução assistida com base no peso: o que pensam os usuários?". Physis: Revista de Saúde Coletiva (2022):
    Accepted
  4. Silva, S.; Machado, H.; De Freitas, C.; Lucas, R.. "Concerns and coping mechanisms during the first national COVID-19 lockdown: an online prospective study in Portugal". Public Health 207 (2022): 24-27.
    10.1016/j.puhe.2022.03.014
  5. Lisi, C; Barros, H; Faisal-Cury, A; Matijasevich, A; De Freitas, C. "The influence of human-milk substitutes marketing on breastfeeding among native and immigrant Brazilians". Journal of Human Lactation (2022):
    Accepted
  6. MacFarlane, A; Ogoro, M; De Freitas, C; Niranjan, V; Severoni, S; Waagensen, E. "Migrants’ involvement in health policy, service development and research in the WHO European Region: policy and practice". Tropical Medicine & International Health 26 10 (2021): 1164-1176.
    10.1111/tmi.13643
  7. De Freitas, C; Amorim, M; Machado, H; Leão Teles, E; Baptista, MJ; Renedo, A; Provoost, V. "Public and patient involvement in health data governance (DATAGov): protocol of a people-centred, mixed-methods study on data use and sharing for rare diseases care and research". BMJ Open 11 3 (2021): e044289.
    10.1136/bmjopen-2020-044289
  8. Pinto da Silva, S; De Freitas, C; Silva, S. "Medical ethics when moving towards non-anonymous gamete donation: the views of donors and recipients". Journal of Medical Ethics (2021): medethics-2020. http://dx.doi.org/10.1136/medethics-2020-106947.
    10.1136/medethics-2020-106947
  9. Baía, I; De Freitas, C; Silva,S. "Priority of Access to Fertility Treatments Based on Sexual Orientation and Marital Status: the Views of Gamete Donors and Recipients". Sexuality Research and Social Policy 18 2 (2021): 368-376.
    10.1007/s13178-020-00464-8
  10. Lisi, C; de Freitas, C; Barros, H. "The Impact of Formula Industry Marketing on Breastfeeding Rates in Native and Migrant Mothers". Breastfeeding Medicine 16 9 (2021): 725-733.
    10.1089/bfm.2021.0041
  11. Samorinha, C; De Freitas, C; Silva, S. "Donor-centred care: the facilitating and constraining factors experienced by gamete donors in a public bank.". Human Fertility (2021):
    Accepted
  12. De Freitas, C; Massag, J; Amorim, M; Fraga, S. "Involvement in maternal care by migrants and ethnic minorities: a narrative review". Public Health Reviews 41 5 (2020):
    10.1186/s40985-020-00121-w
  13. Samorinha, C.; De Freitas, C.; Baía, I.; Machado, H.; Vale-Fernandes, E.; Silva, S.. "Payment to gamete donors: equality, gender equity, or solidarity?". Journal of Assisted Reproduction and Genetics 37 1 (2020): 133-140.
    10.1007/s10815-019-01625-4
  14. Lisi, C; De Freitas, C; Barros, H. "Maternal country of birth and exclusive breastfeeding during the first in-hospital day in Portugal: The influence of the Baby-Friendly Hospital Initiative". Journal of Human Lactation 37 1 (2020): 147-157.
  15. Baía, I.; de Freitas, C.; Samorinha, C.; Provoost, V.; Silva, S.. "Dual consent? Donors’ and recipients’ views about involvement in decision-making on the use of embryos created by gamete donation in research". BMC Medical Ethics 20 1 (2019): 90.
    10.1186/s12910-019-0430-6
  16. Moura, A.; Silva, S.; de Freitas, C.; Abreu, L.; Baía, I.; Samorinha, C.. "Concerns with educating the public about donating and receiving gametes". The European Journal of Contraception & Reproductive Health Care 24 6 (2019): 420-421.
    10.1080/13625187.2019.1662392
  17. Baía, I; Samorinha, C; De Freitas, C; Machado, H; Silva, Susana. "Quality of websites for gamete donation". Revista Eletrônica de Comunicação, Informação e Inovação em Saúde 13 2 (2019):
    10.29397/reciis.v13i2.1556
  18. Silva, SP; De Freitas, C; Baía, I; Samorinha, C; Machado, H; Silva, S. "Doação de gametas: questões sociais e éticas (não) respondidas em Portugal". Cadernos de Saúde Pública 35 2 (2019): 1-20.
    10.1590/0102-311x00122918
  19. Silva, S; Samorinha, C; De Freitas, C. "Anonimato, acesso e partilha de informação na doação de gâmetas em Portugal: como se posicionam os profissionais em medicina da reprodução?". Acta Médica Portuguesa 32 3 (2019): 245-249.
    10.20344/amp.11956
  20. Escobar-Ballesta, M.; García-Ramírez, M.; De Freitas, C.. "Taking stock of Roma health policies in Spain: Lessons for health governance". Health Policy 122 4 (2018): 444-451.
    10.1016/j.healthpol.2018.02.009
  21. Jordão, NM; De Freitas, C; García-Ramírez, M. "Efeitos da crise económica e das políticas de austeridade na saúde e no acesso aos cuidados de saúde da população migrante em países do sul da Europa: revisão scoping". REMHU: Revista Interdisciplinar da Mobilidade Humana 26 54 (2018): 213-230.
    10.1590/1980-85852503880005411
  22. Susana Silva; Catarina Samorinha; Bruno Alves; De Freitas, Cláudia; Helena Machado. "Consentir na criopreservação de embriões: perceção de casais usuários de medicina da reprodução". Interface – Comunicação, Saúde, Educação 21 61 (2017): 435-448.
    10.1590/1807-57622015.0841
  23. De Freitas, Cláudia. "Public and patient participation in health policy, care and research". Porto Biomedical Journal 2 2 (2017): 31-32.
    10.1016/j.pbj.2017.01.001
  24. De Freitas, Cláudia; dos Reis, Vanessa; Susana Silva; Videira, Paula A.; Morava, Eva; Jaeken, Jaak. "Public and patient involvement in needs assessment and social innovation: a people-centred approach to care and research for congenital disorders of glycosylation". BMC Health Services Research 17 1 (2017): 682-693.
    10.1186/s12913-017-2625-1
  25. Samorinha, Catarina; Severo, Milton; Machado, Helena; Figueiredo, Bárbara; De Freitas, Cláudia; Silva, Susana. "Couple's willingness to donate embryos for research: a longitudinal study". Acta Obstetricia et Gynecologica Scandinavica 95 8 (2016): 912-921.
    10.1111/aogs.12900
  26. Legido-Quigley, Helena; Karanikolos, Marina; Hernandez-Plaza, Sonia; De Freitas, Claudia; Bernardo, Luis; Padilla, Beatriz; Machado, Rita Sá; et al. "Effects of the financial crisis and Troika austerity measures on health and health care access in Portugal". Health Policy 120 . (2016): 833-839.
    10.1016/j.healthpol.2016.04.009
  27. Baía, Inês; Amorim, Mariana; Silva, Susana; Kelly-Irving, Michelle; De Freitas, Cláudia; Alves, Elisabete. "Parenting very preterm infants and stress in Neonatal Intensive Care Units". Early Human Development 101 . (2016): 3-9.
    10.1016/j.earlhumdev.2016.04.001
  28. De Freitas, Cláudia. "Aiming for inclusion: a case study of motivations for involvement in mental health-care governance by ethnic minority users". Health Expectations 18 5 (2015): 1093-1104.
    10.1111/hex.12082
  29. De Freitas, Cláudia; Martin, Graham. "Inclusive public participation in health: Policy, practice and theoretical contributions to promote the involvement of marginalised groups in healthcare". Social Science & Medicine 135 1 (2015): 31-39.
    10.1016/j.socscimed.2015.04.019
  30. De Freitas, Cláudia; García-Ramirez, Manuel; Aambø, Arild; Buttigieg, Sandra C.. "Transforming health policies through migrant user involvement: Lessons learnt from three European countries". Psychosocial Intervention 23 2 (2014): 105-113.
    10.1016/j.psi.2014.07.007
  31. De Freitas, Cláudia; Mendes, Álvaro. "A resiliência da saúde migrante: itinerários terapêuticos plurais e transnacionais". Revista Interdisciplinar de Mobilidade Humana 21 40 (2013): 69-92.
    10.1590/S1980-85852013000100005
  32. Padilla, Beatriz; Hernandez-Plaza, Sonia; De Freitas, Claudia; Masanet, Erika; Santinho, Cristina; Ortiz, Alejandra. "Cidadania e diversidade em saúde: necessidades e estratégias de promoção de equidade nos cuidados". Saúde & Tecnologia Suplemento (2013): 57-64. http://www.estesl.ipl.pt/sites/default/files/ficheiros/pdf/art_11_estesl_suplemento_2013.pdf.
  33. Freitas, Cláudia de. "‘Health has no Borders’: Cape Verdean Immigrants in the Netherlands and the Transnational Quest for Health Care Across Europe". International Journal of Migration, Health and Social Care 1 1 (2005): 19-36.
    10.1108/17479894200500004
Journal issue
  1. García-Ramírez, Manuel; Balcázar, Fabricio; De Freitas, Cláudia. "Community psychology contributions to the study of social inequalities, well-being and social justice". Psychosocial Intervention 23 2 (2014):
    10.1016/j.psi.2014.07.009
Report
  1. Padilla, B; Hernandez-Plaza, S; De Freitas, C. 2017. Migrant Integration Policy Index - Health Strand: Country Report Portugal, Brussels: International Organization for Migration.
  2. Portugal, R; Padilla, B; Ingleby, D; De Freitas, C; Lebas, J; Pereira Miguel, J. 2007. Good practices on health and migration in the EU, Report commissioned by the Portuguese Presidency of the Council of the European Union – Ministry of Health.
  3. Watters, C; Ingleby, D; Bernal, M; De Freitas, C; De Ruuk, N; Van Leeuwen, M; Venkatesan, S. 2003. Good practices in mental health and social care for asylum seekers and refugees. Final Report of project for the European Commission - European Refugee Fund.
  4. De Freitas, C. 2003. Identification study. Report on Portugal, In Watters et al (eds) Good practices in mental health and social care for asylum seekers and refugees. Final Report of project for the European Commission - European Refugee Fund.
Website
  1. De Freitas, Cláudia. DATAGov project website. 2020. https://datagov-involve.wixsite.com/datagov/project.
Activities

Oral presentation

Presentation title Event name
Host (Event location)
2022 Getting involved in decisions about health data sharing, access, use and reuse? The views of rare disease patients and carers The 5th Global Public Health Conference 2022
The International Institute of Knowledge Management (Online)
2021 Patient and public involvement in the digitalization of healthcare IV ISA Forum of Sociology
International Sociological Association (online forum)
2021 Science communication and the Covid-19 pandemic: constructing public engagement 5th Navigating Knowledge Landscapes' International Conference
Mid Sweden University (online)
2021 Sharing genetic data for research purposes: expectations and concerns by patients and carers 15th ESA Conference
European Sociological Association (Barcelona/online)
2021 Inclusive co-creation in health research? Involving patients and carers in the governance of health data 15th ESA Conference
European Sociological Association (Barcelona/online)
2020 Benefits and risks of sharing genetic data for research purposes: the views of patients and carers 16th World Congress on Public Health
World Federation of Public Health Associations (online congress)
2020 Participation in data generation and information sharing: are patients and carers willing to engage? 16th World Congress on Public Health
World Federation of Public Health Associations (online congress)
2020 Public preferences for involvement in the governance of health data 16th World Congress on Public Health
World Federation of Public Health Associations (online congress)
2019 Public participation in health data governance: a scoping review 12th European Public Health Conference
European Public Health Association (Marseille, France)
2019 Solidarity and reciprocity in data governance: information sharing among gamete donors and recipients 12th European Public Health Conference
European Public Health Association (Marseille, France)
2019 Data governance in gamete donation: policy on information sharing among gamete donors and recipients
Universidade do Porto (Porto, Portugal)
2018 Ethical and methodological dilemmas in mixed-methods research: an empirically-based perspective about gamete donation. 2nd European Congress of Qualitative Inquiry
KU Leuven Faculty of Social Sciences (Leuven, Belgium)
2018 Anonymized donors and recipients’ intersections in the same space: ethical and practical considerations 2nd European Congress of Qualitative Inquiry
KU Leuven Faculty of Social Sciences (Leuven, Belgium)
2018 Contents about gamete donation on IVF clinics websites: how to assure that the information provided meets people’s needs? 2nd European Congress of Qualitative Inquiry
KU Leuven Faculty of Social Sciences (Belgium)
2018 Roma health governance in Spain: an assessment of policy implementation 1rst World Congress on Migration, Ethnicity, Race and Health
University of Edinburgh (Edinburgh, United Kingdom)
2018 Migrant and ethnic minority participation in health decision-making: achieving inclusive participatory spaces 1rst World Congress on Migration, Ethnicity, Race and Health
University of Edinburgh (Edinburgh, United Kingdom)
2017 Ethical and methodological challenges to public engagement in research about anonymous gamete donation: rethinking citizen science ISA RC10: International Conference Democracy and Participation in the 21st Century
International Sociological Association (Lisbon, Portugal)
2017 Public involvement in health policy-making: an exclusive practice? ISA RC10: International Conference Democracy and Participation in the 21st Century
International Sociologial Association (Lisbon, Portugal)
2017 Sampling procedures on mixed-methods research with parental couples: challenges from joint interviews 7th Conference of the European Survey Research Association (ESRA),17-21 July 2017
(Lisbon, Portugal)
2017 Couple as the unit of analysis: ethics in sampling and data collection drawn from a Portuguese mixed-methods study 21st International Epidemiological Association World Congress of Epidemiology
(Saitama, Japan)
2017 Como envolver o público numa pesquisa sobre doação de gâmetas? Repensar metodologias na ciência cidadã em regimes de anonimato 3ª Conferência da Secção Temática Conhecimento, Ciência e Tecnologia da Associação Portuguesa de Sociologia
(Braga, Portugal)
2017 Socioethical debates about gamete donation in Portugal: questions (un)answered
Universidade do Porto (Porto, Portugal)
2016 Patient-centred care in embryo donation for research European Sociological Association Mid-Term Conference "New directions in health care work and organisations"
(Lisboa, Portugal)
2016 Parental involvement in care in Neonatal Intensive Care Units ESA Mid-Term Conference "New directions in health care work and organisations"
European Sociological Association (Lisboa, Portugal)
2016 Migrant and ethnic minority involvement in healthcare policy and community interventions: a scoping review EUPHA's 6th European Conference on Migrant and Ethnic Minority Health
European Public Health Association (Oslo, Norway)
2016 User involvement: achievements, challenges and future directions COST Action IS1103 ADAPT meeting
(Oslo, Norway)
2016 A (in)disponibilidade de dadores: como contornar as dificuldades? XXXIV Jornadas Internacionais de Estudos da Reprodução
(Tróia, Portugal)
2016 A public health approach to patient-centredness in embryo research 9th European Public Health Conference (EUPHA)
European Public Health Association (Vienna, Austria)
2016 Patient and public participation in needs assessment and social innovations linked to rare diseases 9th European Public Health Conference (EUPHA) Preconference on Patient participation in health care research and innovation
European Public Health Association (Vienna, Austria)
2015 How diversity sensitive is public and patient participation policy? Results from international comparisons’ COST Action IS1103 ADAPT meeting: Participatory approaches to health among groups in vulnerable situations
(Porto, Portugal)
2015 Parenting very preterm infants and stress in Neonatal Intensive Care Units 8th European Public Health Conference
EUPHA (Milan, Italy)
2014 Diversidade, equidade e participação cidadã em saúde II Workshop Internacional Saúde e cidadania: equidade nos cuidados de saúde materno-infantil em tempos de crise
CIES-IUL (Lisbboa, Portugal)
2014 Levering change: barriers to and facilitators of migrant user involvement in healthcare governance 5th EUPHA European Conference on Migrant and Ethnic Minority Health
EUPHA & Andalusian School of Public Health (Granada, Spain)
2014 Do estigma à inclusão: motivações para a participação cidadã na promoção da saúde mental VIII Congresso Português de Sociologia
Associação Portuguesa de Sociologia (Évora, Portugal)
2014 Transformative change in health policy: the impact of participation by socially disadvantaged minority groups COST Action IS1103 meeting: Integrating migrant and ethnic minority users’ perspectives in health care: strategies, measurement and impact
(Lisboa, Portugal)
2013 Bringing migrant and ethnic minority users’ perspectives into health policy and health care: The ADAPT project 14th Biennial conference of The Society for Community Research and Action (SCRA)
American Psychology Association (Miami, United States)
2013 Fostering inclusive citizen participation in health: the engagement of minority groups in healthcare governance European Sociological Association 11th Conference – Crisis, Critique and Change
ESA (Turin, Italy)
2013 Beyond the usual suspects: increasing the representation of disadvantaged minorities in health participatory spaces in times of crisis European Sociological Association 11th Conference – Crisis, Critique and Change
ESA (Turin, Italy)
2013 What is missing in user involvement policy? Barriers to and enablers of participation in health care by groups at risk of exclusion COST Action IS1103 Meeting: User involvement
School of Nursing, University of Seville (Seville, Spain)
2012 Determinantes da participação de utentes de minorias desfavorecidas em saúde mental V Congresso Ibero-americano de Pesquisa Qualitativa em Saúde
(Lisboa, Portugal)
2012 Mobilising, empowering and involving disenfranchised groups in health care 5th Annual European Public Health Association Preconference - Integrating the patient’s perspective in public health and health care
European Public Health Association (St. Julian, Malta)
2012 A participação de utentes migrantes enquanto factor promotor de maior equidade em saúde III Jornadas de Ciência Sociais e Humanas em Saúde - Saúde: vias de reflexão
Escola Superior de Tecnologia da Saúde de Lisboa (Lisboa, Portugal)
2012 What lies ahead? Setting goals for research on inclusive user involvement COST Action IS1103 “Strategic planning meeting for sub-project 8 (User Involvement): Bringing migrant and ethnic minority users’ perspectives into health policy and health care”
COST Action IS1103 (Lisboa, Portugal)
2009 Civil society, CSOs and the state: Reflections from the field of migrant health in Europe COST Action Home Workshop The role of NGOs and CSOs in health care for migrants and ethnic minorities
COST Action Home (Health and Social Care for Migrants and Ethnic Minorities in Europe) (Lisboa, Portugal)
2008 Cape Verdean’s participation in mental health care in the Netherlands: Silent migrants? 5th IMISCOE Cluster B5 Workshop on Migration, Integration and the Internationalisation of Health care
(Lisboa, Portugal)
2007 User involvement in mental health: The Netherlands Joint Meeting of the WHO-HPH Task Force on Migrant-Friendly and Culturally Competent Health Care and COST Action Home (Health and Social Care for Migrants and Ethnic Minorities in Europe)
(Brighton, United Kingdom)
2005 ‘Health has no borders’: Cape Verdean immigrants in the Netherlands and the transnational quest for health care across Europe International Conference on Cape Verdean Migration and Diaspora
(Lisboa, Portugal)
2005 Cape Verdean immigrants in the Netherlands and the transnational quest for health care across Europe 2nd IMISCOE Cluster B5 Workshop
(Lisboa, Portugal)
2005 Participating: until how far? Mapping migrant and ethnic minorities’ participation in mental health care in the Netherlands 2nd Annual IMISCOE Conference
(Osnabrück, Germany)
2003 Survey of care provisions for asylum seekers and refugees in Portugal Conference Good Practices in Mental Health Care and Social Care for Asylum-Seekers and Refugees
(Brussels, Belgium)

Supervision

Thesis Title
Role
Degree Subject (Type)
Institution / Organization
2022 - Current Preferences of rare diseases patients and informal caregivers for engagement in decisions about sharing health data for research
Supervisor of Ana Pinho
Saúde Pública (Master)
Universidade do Porto Faculdade de Medicina, Portugal
2022 - Current Public and patient involvement in health data governance
Supervisor of Nuno Parente
Saúde Pública (PhD)
Universidade do Porto Faculdade de Medicina, Portugal
2021 - Current Fertility preservation in Portugal and Moldova: awareness and atitudes of healthcare providers
Co-supervisor of Alla Tirsina
Saúde Pública
Universidade do Porto Faculdade de Medicina, Portugal
2016 - Current Public views of gamete and embryo donation for reproductive and research purposes: rethinking citizen science
Co-supervisor of Sandra Pinto da Silva
Saúde Pública (PhD)
Universidade do Porto Faculdade de Medicina, Portugal
2021 - 2022 Public and patient involvement in decision-making about health data sharing, access, use and reuse for rare diseases research and care
Supervisor of Ngozi Paschaline Nwebonyi
Saúde Pública (Master)
Universidade do Porto Faculdade de Medicina, Portugal
2016 - 2022 Breastfeeding, industry marketing and migration in the era of globalization
Supervisor of Cosima Lisi
Saúde Pública Global (PhD)
Universidade do Porto Faculdade de Medicina, Portugal
2019 - 2021 Quality of life of Syrian migrants living in Portugal
Co-supervisor of Walaa Kinaan
Saúde Pública (Master)
Universidade do Porto Faculdade de Medicina, Portugal
2019 - 2020 Donating gametes to family and friends: the views of donors and recipients
Co-supervisor of Alla Tirsina
Saúde Pública (Master)
Universidade do Porto Faculdade de Medicina, Portugal
2016 - 2020 Governance of gamete donation: insights for ethically sustainable policies and guidelines
Co-supervisor of Inês Baía
Saúde Pública (PhD)
Universidade do Porto Faculdade de Medicina, Portugal
2018 - 2019 Involvement in maternal care by migrant women in Portugal
Supervisor of Janka Rebecca Massag
Saúde Pública (Master)
Universidade do Porto Faculdade de Medicina, Portugal
2018 - 2019 People-centred policy for data governance in gamete donation: access to information by gamete donors and recipients
Supervisor of Tiago Maia
Saúde Pública (Master)
Universidade do Porto Faculdade de Medicina, Portugal
2016 - 2017 Enabling factors of the Community Health Worker Program in the Fiji Islands
Supervisor of Jyotishna Mudaliar
Public Health (Master)
Fiji National University, Fiji
2015 - 2016 Efeitos da crise económica e das políticas de austeridade na saúde e no acesso aos cuidados de saúde da população imigrante em quatro países do Sul da Europa: revisão scoping
Co-supervisor of Nuno Jordão
Migraciones Internacionales, Salud y Bienestar (Master)
Universidad de Sevilla, Spain

Event organisation

Event name
Type of event (Role)
Institution / Organization
2021 - Current Film session and debate on "The human face of Big Data", CineISPUP - scientific culture dissemination event (2021/05/05) (2021) Universidade do Porto Instituto de Saúde Pública, Portugal
2021 - Current Film session and debate on "Coded Bias", CineISPUP - scientific culture dissemination event (2021/12/16) (2021) Universidade do Porto Instituto de Saúde Pública, Portugal
2019 - 2019 Seminar "Citizen participation in health", ISPUP Open Seminars (2019/12/20) Instituto de Saúde Pública da Universidade do Porto (ISPUP), Portugal
2019 - 2019 Film session and debate on "The immortal life of Henrietta Lacks", CineISPUP - scientific culture dissemination event (2019/05/12) Instituto de Saúde Pública da Universidade do Porto (ISPUP), Portugal
2018 - 2018 Symposium "Innovative approaches to ethical and methodological challenges in health research" (with Susana Silva), 2nd European Congress of Qualitative Inquiry (2018/02/06 - 2018/02/09) Katholieke Universiteit Leuven - Campus Brussel, Belgium
2018 - 2018 Workshop "Migrant and ethnic minority participation in health decision-making: achieving inclusive participatory spaces" (with Anne MacFarlane and David Ingleby), 1rst World Congress on Migration, Ethnicity, Race and Health (2018/05/17 - 2018/05/19) The University of Edinburgh, United Kingdom
2016 - 2016 Session "Patient-centred care and public involvement in health technologies" (with Alicia Renedo and Susana Silva), European Sociological Association Mid-Term Conference (2016/05/18 - 2016/05/20)
Other (Other)
Universidade Nova de Lisboa, Portugal
2016 - 2016 Seminar "Saúde e doença: sociologia e saúde pública em diálogo" [Health and illness: sociology and public health in dialogue], ISPUP Open Seminars (2016/05/27) Instituto de Saúde Pública da Universidade do Porto (ISPUP), Portugal
2015 - 2015 Working Group meeting COST Action IS1103 "Participatory approaches to health among groups in vulnerable situations" (2015/04/29 - 2015/04/30) European Cooperation in Science and Technology, Belgium
2014 - 2014 2nd International Workshop "Health and Citizenship: Equity in maternal-child healthcare in times of crisis” (with Beatriz Padilla et al.) (2014/02/27 - 2014/02/28) Universidade do Minho Centro Interdisciplinar de Ciências Sociais, Portugal
2014 - 2014 Working Group meeting COST Action IS1103 "Integrating migrant and ethnic minority users’ perspectives in health care: strategies, measurement and impact" (2014 - 2014) European Cooperation in Science and Technology, Belgium
2014 - 2014 Seminar "Desigualdade, diversidade e saúde em tempos de crise" [Inequalities, diversity and health in times of crisis](with Beatriz Padilla, Sonia Hernandez-Plaza, Alejandra Ortiz) (2014/11/04) Universidade do Minho Centro Interdisciplinar de Ciências Sociais, Portugal
2013 - 2013 Working Group meeting COST Action IS1103 "User involvement" (2013 - 2013) European Cooperation in Science and Technology, Belgium
2012 - 2012 Session "Diversidade em saúde: necessidades e barreiras no acesso aos cuidados" [Diversity in health: needs and barriers to access to health care" (with Beatriz Padilla and Sonia Hernandez-Plaza), III Jornadas de Ciência Sociais e Humanas em Saúde (2012/11/23 - 2012/11/24) Instituto Politécnico de Lisboa Escola Superior de Tecnologia da Saúde de Lisboa, Portugal
2012 - 2012 Session "Diversidade em saúde: estratégias de promoção de equidade nos cuidados" [Diversity in health: strategies to promote equity in health care](with Beatriz Padilla and Sonia Hernandez-Plaza), III Jornadas de Ciência Sociais e Humanas em Saúde (2012/11/23 - 2012/11/24) Instituto Politécnico de Lisboa Escola Superior de Tecnologia da Saúde de Lisboa, Portugal
2012 - 2012 Working Group meeting COST Action IS1103 "Bringing migrant and ethnic minority users’ perspectives into health policy and health care" (2012 - 2012) European Cooperation in Science and Technology, Belgium
2007 - 2009 ERCOMER Monthly Research Seminars (2007/09/01 - 2009/06/30) Utrecht University - European Research Centre on Migration and Ethnic Relations (ERCOMER), Netherlands
2001 - 2001 Conference Jornadas de Psicologia Clínica Sistémica: (Des)Encontros no Casal (with Adriana Silva, Eliana Costa, Nuno Craveiro, Ester Eche) (2001/05/13 - 2001/05/14) Universidade de Coimbra Faculdade de Psicologia e de Ciências da Educação, Portugal

Event participation

Activity description
Type of event
Event name
Institution / Organization
2022 - 2022 Invited speaker - A participação de pessoas com doenças raras na governação de dados de saúde
Conference
Dia Mundial das Doenças Raras 2022
Instituto Nacional de Saúde Doutor Ricardo Jorge, Portugal
2021 - 2021 Discussant - Book: "Exploring Healthcare bricolage in Europe's superdiverse neighbourhoods"
Conference
53rd Annual British Sociological Association Medical Sociology Conference
British Sociological Association, United Kingdom
2021 - 2021 Keynote speaker - Saúde * Cidadão * Comunidade: Construção participada e partilhada. A participação pública na governação de dados de saúde (Health * Citizen * Community: Shared and participatory construction. Public participation in health data governance)
Conference
9ª Conferência Valor APAH
Associação Portuguesa de Administradores Hospitalares, Portugal
2021 - 2021 Moderator - Film and debate session "The human face of Big Data" CineISPUP - science communication event
Universidade do Porto Instituto de Saúde Pública, Portugal
2021 - 2021 Invited speaker - “Candidaturas com Sucesso...” Concurso de Projetos em Todos os Domínios Científicos da Fundação para a Ciência e Tecnologia
Other
Candidaturas com Sucesso...
Universidade do Minho Instituto de Ciências Sociais, Portugal
2021 - 2021 Invited speaker - Participación ciudadana en la gobernanza de datos de salud: confianza, inclusión e integración. (Public health participation in health data governance: trust, inclusion and integration)
Seminar
Salud Romaní y Participación en Contextos de Discriminación. Retos y Oportunidades para la Psicología de la Intervención Social y Comunitaria (Roma health and participation in contexts of discrimination)
Facultad de Psicologia, Universidad de Sevilla, Spain
2021 - 2021 Moderator - Film and debate session "Coded Bias" CineISPUP - science communication event
Universidade do Porto Instituto de Saúde Pública, Portugal
2020 - 2020 Invited speaker - Painel "Igualdade na saúde para todos"
Other
Semana Europeia da Saúde Pública 2020
Associação Nacional de Médicos de Saúde Pública, Portugal
2019 - 2019 Moderator - "Citizen participation in health" by Sofia Crisóstomo
Seminar
ISPUP Open Seminars
Instituto de Saúde Pública da Universidade do Porto (ISPUP), Portugal
2019 - 2019 Moderator - "The immortal life of Henrietta Lacks"
Other
CineISPUP - scientific culture dissemination event
Instituto de Saúde Pública da Universidade do Porto (ISPUP), Portugal
2018 - 2018 Invited speaker - A comunidade CDG: necessidade e estratégias para promover o cuidado e a investigação
Other
Think metabolic, Think CDG! Educational Program of Excellence on Congenital Disorders of Glycosylation – APCDG-DMR
Associação Portuguesa de CDG - APCDG, Portugal
2018 - 2018 Moderator - "Innovative approaches to ethical and methodological challenges in health research"
Congress
2nd European Congress on Qualitative Inquiry
Katholieke Universiteit Leuven - Campus Brussel, Belgium
2017 - 2017 Invited speaker - Public and patient involvement in assessing needs and developing social innovations for rare diseases: the case of CDG. Think metabolic, Think CDG! Educational Program of Excellence on Congenital Disorders of Glycosylation - APCDG-DMR/ Ordem dos Médicos
Associação Portuguesa de CDG - APCDG, Portugal
2017 - 2017 Invited speaker - Engaging publics: migrant participation in health care decision-making
Conference
ASPHER Directors' and Deans' Retreat
Association of Schools of Public Health in the European Region - ASPHER, France
2017 - 2017 Invited speaker - The needs of people affected by CDG and community-framed strategies to address them
Conference
3rd World Conference on CDG
Associação Portuguesa de CDG - APCDG, Portugal
2017 - 2017 Commentator - Film "I, Daniel Blake"
Other
CineISPUP - science communication event
Universidade do Porto Instituto de Saúde Pública, Portugal
2016 - 2016 Moderator - "Saúde e doença: sociologia e saúde pública em diálogo" [ [Health and illness: sociology and public health in dialogue]
Seminar
ISPUP Open Seminars
Instituto de Saúde Pública da Universidade do Porto (ISPUP), Portugal
2016 - 2016 Invited speaker - "Aproximación bottom-up: Investigación de Base Comunitaria" [Bottom-up approach: community-based research]
Round table
Mejora del bienestar inmigrante en Andalucía. Nuevas aproximaciones. [Improving migrants wellbeing in Andalucia]
Junta de Andalucia, Consejería de la Presidencia y Administración Local - Centro de Estudios Andaluces, Spain
2015 - 2015 Moderator - "Participatory approaches to health among groups in vulnerable situations"
Meeting
COST Action IS1103 meeting
European Cooperation in Science and Technology, Belgium
2015 - 2015 Invited speaker - Public and patient involvement in rare diseases
Conference
2nd World Conference on Congenital Disorders of Glycosylation
Associação Portuguesa de CDG - APCDG, Portugal
2014 - 2014 Moderator - "Use of pre- and post-natal care by non-western women in the Netherlands"¿ by Walter Devillé
Workshop
II Workshop Internacional Saúde e cidadania: equidade nos cuidados de saúde materno-infantil em tempos de crise
Centro de Estudos e Investigação em Sociologia - Instituto Universitário de Lisboa (CIES-IUL), Portugal
2014 - 2014 Rapporteur - "Strategies to increase the inclusiveness of participatory processes: concluding remarks and discussion"
Meeting
COST Action IS1103 meeting
European Cooperation in Science and Technology, Belgium
2014 - 2014 Moderator - "Integrating migrant and ethnic minority users¿ perspectives in health care: strategies, measurement and impact"
Meeting
COST Action IS1103 meeting
European Cooperation in Science and Technology, Belgium
2014 - 2014 Invited speaker - Cidadania, equidade e diversidade em saúde: a voz dos cidadãos
Seminar
Seminário Desigualdades, Diversidade e Saúde em Tempos de Crise
Universidade do Minho Centro Interdisciplinar de Ciências Sociais, Portugal
2013 - 2013 Rapporteur - "User involvement: meeting concluding remarks"
Meeting
COST Action IS1103 Meeting
European Cooperation in Science and Technology, Belgium
2013 - 2013 Invited speaker - Participación ciudadana en salud. Promoviendo el involucramiento de colectivos en riesgo de exclusión [Citizen participation in health. Promoting the involvement of groups at riks of exlcusion"]
Workshop
PROCOMDI: Avances de Investigación
Facultad de Psicologia, Universidad de Sevilla, Spain
2012 - 2012 Invited speaker - Oportunidades de mudança: uma voz cabo-verdiana nos cuidados de saúde mental holandeses Seminário + Saúde, Género e Imigração
2012 - 2012 Invited speaker - Relatos de investigação na América Latina: A participação cidadã em saúde mental no Brasil Curso de Verão - América Latina Hoje
ISCTE-Instituto Universitário de Lisboa, Portugal
2012 - 2012 Invited speaker - Participação cidadã
Seminar
Seminário Preparatório do Fórum Cidadania pelo Estado Social - Serviço Nacional de Saúde
Associação 25 de Abril , Portugal
2012 - 2012 Moderator - "Bringing migrant and ethnic minority users perspectives into health policy and health care"
Meeting
COST Action IS1103 meeting
European Cooperation in Science and Technology, Belgium
2012 - 2012 Rapporteur - "Saúde, participação e migrações" [Health, participation and migration]
Other
Fórum de Pesquisas CIES: Os múltiplos olhares das ciências sociais sobre a saúde
Centro de Estudos e Investigação em Sociologia - Instituto Universitário de Lisboa (CIES-IUL), Portugal
2012 - 2012 Invited speaker - Participación de los Usuarios Inmigrantes en los Cuidados de Salud Mental: Desafíos y Logros [Participation in mental health care by immigrant users: challenges and opportunities]
Symposium
Equidad y Salud en Comunidades Diversas: Un Desafío Compartido
Facultad de Psicologia, Universidad de Sevilla, Spain
2009 - 2009 Invited speaker - Cabo-verdianos e saúde mental na Holanda [Cape Verdean migrants in the Netherlands]
Conference
As múltiplas faces da migração cabo-verdiana
Alto Comissariado para a Imigração e Diálo Intercultural (ACIDI), Cape Verde
2007 - 2007 Rapporteur - "Recommendations for the development of mental health services for migrants"
Conference
Health and Migration in the EU: Better health for all in an inclusive society
Ministério da Saúde, Portugal
2007 - 2007 Invited speaker - O Movimento dos Usuários em saúde mental na Holanda [The mental health user movement in the Netherlands]
Seminar
A inserção dos usuários nos serviços de saúde mental
Secretaria Municipal de Saúde do Rio de Janeiro, Brazil
2006 - 2006 Invited speaker - Migrant health in Portugal: Past. Present! Future?
Workshop
3rd IMISCOE Cluster B5 Workshop
Universidade de Lisboa Centro de Estudos Geográficos, Portugal
2003 - 2003 Invited speaker - Migrants health situation in Portugal
Other
Work Session Immigrants living in extreme conditions
European Parliament - Comission on Immigration, Belgium

Jury of academic degree

Topic
Role
Candidate name (Type of degree)
Institution / Organization
2022/03/29 Public and patient involvement in decision-making about health data sharing, access, use, and reuse for rare diseases research and care
Supervisor
Ngozi Nwebonyi (Master)
Universidade do Porto Faculdade de Medicina, Portugal
2022/02/15 Breastfeeding, industry marketing and migration in the era of globalization
Supervisor
Cosima Lisi (PhD)
Universidade do Porto Faculdade de Medicina, Portugal
2021/11/05 Developing a multi-level advocacy framework for Roma health at the local level
(Thesis) Main arguer
Daniela Miranda Rojas (PhD)
Facultad de Psicologia, Universidad de Sevilla, Spain
2021/10/22 Quality of life of Syrian migrants living in Portugal
Supervisor
Walaa Kinaan (Master)
Universidade do Porto Faculdade de Medicina, Portugal
2021/07/28 A saúde armazenada. O biobanco na reconfiguração da saúde na sociedade contemporânea (Stored health. The biobank and the reconfiguration of health in contemporary society)
(Thesis) Main arguer
Brígida Riso (PhD)
ISCTE-Instituto Universitário de Lisboa Escola de Sociologia e Políticas Públicas, Portugal
2020/12/16 El desarrollo de la resiliencia en refugiados y migrantes a través de los factores de protección y riesgo: Importancia de la intervención psicosocial (Resilience development among refugees and migrants through protecting and risk factors: the importance of psychosocial intervention)
(Thesis) Main arguer
María Aguilar Serrano (Master)
Facultad de Psicologia, Universidad de Sevilla, Spain
2020/12/16 Desarrollo sociopolítico de las trabajadoras del hogar migrantes en Sevilla: Experiencias vitales que impulsan su acción transformadora (Sociopolitical development by migrant domestic workers in Seville: vital experiences that promote their transformative action)
(Thesis) Main arguer
Wendy Tatiana Duque Moreno (Master)
Facultad de Psicologia, Universidad de Sevilla, Spain
2020/12/16 Intervenciones Sociales y Comunitarias Promotoras de la Inclusión Social de Personas Refugiadas y Solicitantes de Asilo en Sociedades Receptoras: Una Revisión Sistemática (Social and community interventions to promote social inclusion by asylum seekers and refugees in host societies: a systematic review)
(Thesis) Main arguer
Laura Cherino Brescia Máster (Master)
Universidad de Sevilla Facultad de Psicología, Spain
2020/07/15 Multidimensional social exclusion and immigrants' health in Europe
(Thesis) Main arguer
Ana María Arias Uriona (PhD)
Universidade Nova de Lisboa Escola Nacional de Saúde Pública, Portugal
2019/11/14 Involvement in maternal care by migrant women in Portugal
Supervisor
Janka Rebecca Massag (Master)
Universidade do Porto Faculdade de Medicina, Portugal
2019/01/10 People-centred policy for data governance in gamete donation: access to information by gamete donors and recipients
Supervisor
Tiago Maia (Master)
Universidade do Porto Faculdade de Medicina, Portugal
2018/09/10 Distributed health literacy among people living with chronic conditions
Thesis Member
Liliana Abreu (PhD)
Universidade do Porto Faculdade de Medicina, Portugal
2017/12/06 Enabling factors of the Community Health Worker Program in the Fiji Islands
Supervisor
Jyotishna Mudaliar (Master)
Universidade do Porto Faculdade de Medicina, Portugal
2017/03/24 Participation of civil society in European Union (EU) decision-making and agenda-setting: the role of patient organisations in EU health policy
(Thesis) Main arguer
Ana Lúcia Vitorino Cardoso (Master)
Instituto de Geografia e Ordenamento do Território, Portugal

Association member

Society Organization name Role
2021 - Current Global Society on Migration, Ethicity, Race and Health
2016/04 - Current CDG & Allies - Professionals and Patient Associations International Network
2014/02 - Current Associação Portuguesa de Sociologia
2013/06 - Current Rede Migra
2013 - Current Coalition for the Study of Health, power and Diversity (CESPYD)
2012 - Current European Sociological Association (ESA)
2006 - 2012 Grupo Imigração e Saúde (GIS)
2005 - 2009 IMISCOE - Network of Excellence on International Migration, Integration and Social Cohesion

Committee member

Activity description
Role
Institution / Organization
2015 - Current ISPUP Scientific Committee Universidade do Porto Instituto de Saúde Pública, Portugal
2012 - 2017 CIES-IUL Scientific Committee Centro de Estudos e Investigação em Sociologia - Instituto Universitário de Lisboa (CIES-IUL), Portugal

Course / Discipline taught

Academic session Degree Subject (Type) Institution / Organization
2020 - Current Ética e Filosofia da Ciência (Ethics and Filosophy of Science] Saúde Pública (Doutoramento) Universidade do Porto Faculdade de Medicina, Portugal
2018 - Current Métodos Avançados em Análise de Dados Qualitativos [Advanced Methods in Qualitative Data Analysis] Saúde Pública (Doutoramento) Universidade do Porto Faculdade de Medicina, Portugal
2018 - Current Métodos Qualitativos em Saúde [Qualitative Research Methods] Saúde Pública (Mestrado integrado) Universidade do Porto Faculdade de Medicina, Portugal
2017 - Current Annual Intensive Course - Metodologias Mistas de Investigação em Saúde [Mixed Methods in Health Research] Outra (Outros) Instituto de Saúde Pública da Universidade do Porto (ISPUP), Portugal
2017 - Current Administração e Sistemas de Saúde [Health Systems Administration] Saúde Pública (Doutoramento) Universidade do Porto Faculdade de Medicina, Portugal
2017 - Current Administração e Políticas de Saúde [Health Policy and Administration] Saúde Pública (Mestrado) Universidade do Porto Faculdade de Medicina, Portugal
2015 - Current Sociologia da Saúde [Sociology of Health] Curso de especialização em Saúde Pública [Specialization course in Public Health] (Especialização pós-licenciatura) (Outros) Universidade do Porto Instituto de Saúde Pública, Portugal
2014 - Current Migraciones y diversidad en la Europa global: el papel de la salud y el bienestar social [Migration and diversity in global Europe: the role of health and well-being] Master en Migraciones Internacionales, Salud y Bienestar [International Migration, Health and Well-being] (Outros) Universidad de Sevilla Facultad de Psicología, Spain
2015 - 2015 2nd Intensive Course - Investigação Qualitativa em Saúde [Qualitative Health Research] Outro (Outros) Instituto de Saúde Pública da Universidade do Porto (ISPUP), Portugal

Evaluation committee

Activity description
Role
Institution / Organization Funding entity
2022 - 2022 SONATA Funding Scheme - External reviewer
Evaluator
Narodowe Centrum Nauki, Poland Narodowe Centrum Nauki
2021 - 2022 European Research Council Consolidator Grants - Evaluation Panel Member
Evaluator
European Commission, Belgium Horizon Europe programme
2019 - 2019 COST Open Call for Proposals OC-2018-2 - Independent External Expert
Evaluator
European Commission, Belgium EU Framework Programme Horizon

Journal scientific committee

Journal title (ISSN) Publisher
2020 - Current Frontiers in Sociology - Medical Sociology (Associate Editor) Frontiers Media SA
2022 - 2022 Health Expectations (Peer review) Wiley-Blackwell Publishing Ltd
2021 - 2021 Social Science and Medicine - Medical Sociology (Peer review) Elsevier
2021 - 2021 International Journal of Health Policy and Management (Peer review) Kerman University of Medical Sciences
2019 - 2021 Frontiers in Public Health - Inequalities in Health (Review Editor) Frontiers Media SA
2019 - 2021 Social Science & Medicine - Health Psychology section (Peer Review) Elsevier
2017 - 2020 Health Research Policy and Systems (Peer Review) BioMed Central
2019 - 2019 Health Policy and Planning (Peer Review) Oxford University Press
2019 - 2019 Science Technology and Society (Peer Review) SAGE Publications
2019 - 2019 Social Theory and Health (Peer Review) Palgrave
2019 - 2019 Health and Social Care in the Community (Peer review) Wiley
2018 - 2018 Journal of Ethnic and Migration Studies (Peer Review) Taylor & Francis Group
2018 - 2018 BMC Public Health (Peer Review) BioMed Central
2014 - 2018 Revista Migrações (Peer Review) Alto Comissariado para as Migrações
2014 - 2018 Qualitative Health Research (Peer Review) Sage Publications
2017 - 2017 Interface – Comunicação, Saúde, Educação (Peer Review) UNESP
2016 - 2017 Social Science & Medicine - Medical Anthropology Section (Peer Review) Elsevier
2015 - 2017 Social Science & Medicine- Medical Sociology Section (Peer Review) Elsevier
2016 - 2016 Journal of Disease and Global Health (Peer Review) Publons
2016 - 2016 Globalization and Health (Peer Review) BioMed Central
2016 - 2016 Public Health Panorama (Peer Review) WHO/Europe
2015 - 2015 Social Science & Medicine - Medical Geography Section (Peer Review) Elsevier
2015 - 2015 Global Journal of Community Psychology Practice (Peer Review) Society for Community Research and Action
2015 - 2015 Health Expectations (Peer Review) Wiley
2014 - 2015 Health Promotion International (Peer Review) Oxford University Press
2012 - 2014 Psychosocial Intervention (Peer Review) Elsevier
2012 - 2012 International Journal of Immigrant and Minority Health Springer
2011 - 2011 Global Networks (Peer Review) Wiley

Mentoring / Tutoring

Topic Student name
2021 - 2021 Visiting medical intern, Project "Public and patient involvement in health data governance (DATAGov)" Laura de la Torre
2019 - 2021 Research fellow, Project "Public and patient involvement in health data governance (DATAGov)" Tiago Maia
2019 - 2021 Postdoc researcher, Project "Public and patient involvement in health data governance (DATAGov)" Mariana Amorim
2018 - 2018 Research fellow, Project "Making asylum systems work in the EU" Tiago Maia
2016 - 2016 Mobility fellow, COST Action IS1103 Short-term Scientific Mission "A community-based approach to Roma health mediation" Marta Escobar Ballesta
2015 - 2015 Visiting scholar, University of Seville Faculty of Psychology Virginia Paloma

Other jury / evaluation

Activity description Institution / Organization
2022 - Current Referee - Award Francisco Mercado Congresso Ibero-Americano de Investigação Qualitativa em Saúde, Brazil
Distinctions

Award

2019 ISCTE-IUL Scientific Award
ISCTE-Instituto Universitário de Lisboa, Portugal
2018 International Conference on Breastfeeding / Conferência Internacional de Aleitamento Materno - Best Poster Award
Comissão Nacional Iniciativa Hospitais Amigos dos Bebés / UNICEF, Portugal
2018 ISCTE-IUL Scientific Award
ISCTE-Instituto Universitário de Lisboa, Portugal
2017 ISCTE-IUL Scientific Award
ISCTE-Instituto Universitário de Lisboa, Portugal
2016 ISCTE-IUL Scientific Award
ISCTE-Instituto Universitário de Lisboa, Portugal
2016 6th European Conference on Migrant and Ethnic Minority Health of the European Public Health Association - Best Poster Prize
Norwegian Medical Association, Portugal

Other distinction

2016 Postdoc Research Fellowship
Fundação para a Ciência e a Tecnologia, Portugal
2015 Short-term Scientific Mission Grant
COST Action IS1103, EU Framework Programme 2020, Portugal
2012 Postdoc Research Fellowship
Fundação para a Ciência e a Tecnologia, Portugal
2009 Short-term Scientific Mission Grant
COST Action IS0603 (HOME), EU 7th Framework Programme, Portugal
2008 MA thesis selected as "one of the most remarkable theses written in ISHSS history", promoted by International School of Humanities and Social Sciences, University of Amsterdam
International School of Humanities and Social Sciences, University of Amsterdam, Portugal
2004 PhD Grant
Fundação para a Ciência e a Tecnologia, Portugal
1999 Socrates-Erasmus Student Mobility Grant
European Comission, Portugal