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Ngozi Nwebonyi holds a Master’s degree in Public health from Faculdade de Medicina da Universidade do Porto, Portugal, and a Bachelor in Medical Laboratory Science from the Faculty of Health Science and Technology, Ebonyi State University, Nigeria. Her research interests include public and patient involvement, health data governance and public engagement in data-intensive research for personalized medicine. She has conference and journal publications based on her MSc thesis. She also participated as a Master student researcher in the DATAGov project, a mixed methods project that focuses on public and patients’ involvement in health data governance. Ngozi is a member of Scientific Committee at Instituto de Saúde Pública da Universidade do Porto (ISPUP). She also volunteers as a health communication officer at Kachem Young Initiatives (KYI), a transnational charitable non-governmental organisation which advocates for inclusivity, equality, and access in the education sector in Africa
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Identification

Personal identification

Full name
Ngozi Nwebonyi

Citation names

  • Ngozi Nwebonyi

Author identifiers

Ciência ID
9C1C-3EDF-E3AC

Addresses

  • Instituto de Saúde Pública da Universidade do Porto (ISPUP) Rua das Taipas 135, 4050-600, Porto, Porto, Portugal (Professional)

Knowledge fields

  • Medical and Health Sciences - Health Sciences - Social Biomedical Sciences

Languages

Language Speaking Reading Writing Listening Peer-review
English Proficiency (C2) Proficiency (C2) Proficiency (C2) Proficiency (C2) Proficiency (C2)
Portuguese Beginner (A1) Beginner (A1) Beginner (A1) Beginner (A1)
Education
Degree Classification
2020/09 - 2022/03
Concluded
 Saúde Pública (Mestrado)
Universidade do Porto Faculdade de Medicina, Portugal
"Public and patient involvement in decision-making about health data sharing, access, use, and reuse for rare diseases care and research" (THESIS/DISSERTATION)
 17
2008/09 - 2014/12
Concluded
 Medical Laboratorty Science (Bachelor)
Major in Medical Microbiology
Ebonyi State University Faculty of Health Science and Technology, Nigeria
"Prevalence of Cryptosporidiosis among HIV/AIDS patients in Abakaliki Metropolis. " (THESIS/DISSERTATION)
 17
Outputs

Publications

Conference abstract
  1. Ngozi Nwebonyi; Silva, Susana; De Freitas, Cláudia. "Involvement in decision-making about health data sharing, access, use and reuse: the views of rare diseases patients and carers". Paper presented in IJUP - 15ª Edição do Encontro Investigação Jovem da U. Porto, Book of Abstracts Young Researchers Meeting, 2022., Porto, 2022.
    Accepted
  2. Ngozi Nwebonyi; Silva, Susana; De Freitas, Cláudia. "Getting involved in decisions about health data sharing, access, use and reuse? The views of rare disease patients and carers". Paper presented in The 5th Global Public Health Conference 2022, In: Book of Abstracts of the 5th Global Public Health Conference 2022, Virtual, 2022.
    Published
Conference paper
  1. Ngozi Nwebonyi. "Public and patient s participation in decisions about health data sharing, access, use and reuse.". Paper presented in Public and Patients Involvement in Health Data Governance, 2022.
  2. Ngozi Nwebonyi; De Freitas, Cláudia; Silva, Susana. "Public views about decision-making regarding health data sharing, access, use and reuse". Paper presented in 2nd EUGLOH Annual Students Research Conference, 2021 (Global Health in Humanities and Social Sciences), 2021.
Journal article
  1. Amorim, Mariana; Silva, Susana; Machado, Helena; Teles, Elisa Leão; Baptista, Maria João; Maia, Tiago; Nwebonyi, Ngozi; de Freitas, Cláudia. "Benefits and Risks of Sharing Genomic Data for Research: Comparing the Views of Rare Disease Patients, Informal Carers and Healthcare Professionals". International Journal of Environmental Research and Public Health 19 14 (2022): 8788. http://dx.doi.org/10.3390/ijerph19148788.
    Published • 10.3390/ijerph19148788
  2. Nwebonyi, Ngozi; Silva, Susana; de Freitas, Cláudia. "Public Views About Involvement in Decision-Making on Health Data Sharing, Access, Use and Reuse: The Importance of Trust in Science and Other Institutions". Frontiers in Public Health 10 (2022): http://dx.doi.org/10.3389/fpubh.2022.852971.
    10.3389/fpubh.2022.852971
Activities

Oral presentation

Presentation title Event name
Host (Event location)
2022/05 Involvement in decision-making about health data sharing, access, use and reuse: the views of rare diseases patients and carers IJUP - 15ª Edição do Encontro Investigação Jovem da U. Porto, Young Researchers Meeting, 2022
Encontro Investigação Jovem da U. Porto, (Porto, Portugal)
2022/02 Getting involved in decisions about health data sharing, access, use and reuse? The views of rare disease patients and carers 5th Global public health Virtual conference 2022
The International Institute of Knowledge Management (TIIKM)
2021/09/30 Public views about Involvement in decision-making regarding health data sharing, access, use and reuse Global Health in Humanities and Social Sciences-Virtual Conference
European University Alliance for Global Health (EUGLOH)
2016/06 Blood Coagulation Pathways Seminar
Heamatology unit, Alex Ekwueme Federal Teaching Hospital (Abakaliki, Nigeria)
2015/10 Methods of Anaerobic Cultivation Seminar
Microbiology Unit, Alex Ekwuem federal teaching Hospital (Abakaliki, Nigeria)

Event organisation

Event name
Type of event (Role) 		Institution / Organization
2021/12/16 - 2021/12/16 Film/documentary exhibition featuring "Coded Bias" by DATAGov Project Activities: -Preparation of event poster -Participation in discussion and commentaries during the event -Writing documentary summary for publication at DATAGov website (2021/12/16 - 2021/12/16)
Exhibition (Co-organisor)
 Universidade do Porto Instituto de Saúde Pública, Portugal

Committee member

Activity description
Role 		Institution / Organization
2020/10 - Current Reveiwing of Scientific papers & Participation in committee meetings
Member
 Universidade do Porto Instituto de Saúde Pública, Portugal