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Researcher at CES - Center for Social Studies (University of Coimbra). She holds a BA and MA in Sociology at University of Trento (Italy). She holds a PhD in "Human Rights in Contemporary Societies" at CES, with a thesis on the experiences of LGBTQ+ adults with chronic illness in Italy and Portugal. In 2023 she published "LGBTQ+ People with Chronic Illness: Chroniqueers in Southern Europe" (Palgrave MacMillan). Her PhD research won the "Controtempo" Prize, awarded to early-career researchers by Codici Ricerca e Intervento (Milan) to develop the multimedia project "Chroniqueers" (www.chroniqueers.it); it also won the Special Mention for the Prize "Virgínia Quaresma" in Cultural Studies (Univ. Aveiro). She has deep expertise as a consultant in inclusive and accessible communication, and communication of science. Since 2018 she coordinates the Research Stream on Sexuality and Gender of the APS - Portuguese Sociological Association. She co-organises the series of seminars "Sharp Talks - Health, Sexuality and Human Rights" at CES and she integrates the thematic line "Democracy, justice and human rights". She is a member of the research team in the project "REMEMBER - Vivências de Pessoas LGBTQ Idosas no Portugal Democrático (1974-2020)". In 2021 she was a pos-doctoral researcher at CES. After winning the national competition CEEC by FCT she has been a researcher since 2022 and will develop her project on LGBTQ+ access to healthcare until 2027. She works on disability studies and queer and crip studies through an intersectional approach and a specific focus on chronic illness. Her research interests include supercrips; medicalisation; chronic illness and invisible disabilities; accessibility; sexualities in Southern Europe; LGBTQ+ health.
Identification

Personal identification

Full name
Mara Pieri

Author identifiers

Ciência ID
9A12-82DA-3230
ORCID iD
0000-0001-5864-7972

Email addresses

  • marapieri@ces.uc.pt (Personal)

Websites

Knowledge fields

  • Social Sciences - Sociology

Languages

Language Speaking Reading Writing Listening Peer-review
Italian (Mother tongue)
English Advanced (C1) Proficiency (C2) Advanced (C1) Advanced (C1) Advanced (C1)
Portuguese Advanced (C1) Advanced (C1) Advanced (C1) Advanced (C1) Advanced (C1)
Spanish; Castilian Intermediate (B1) Upper intermediate (B2) Intermediate (B1) Upper intermediate (B2) Intermediate (B1)
Education
Degree Classification
2015/10/01 - 2021/02/19
Concluded
Human Rights in Contemporary Societies (Doutoramento)
Universidade de Coimbra Centro de Estudos Sociais, Portugal
"Chroniqueeers. Time, care and visibility in narratives from queer people with a chronic illness." (THESIS/DISSERTATION)
Full marks, distinction and honours
2011
Concluded
Laurea Specialistica in Società, Territorio, Ambiente (Laurea Magistrale)
Università degli Studi di Trento, Italy
110/110 cum laude
2008
Concluded
Sociologia (Laurea)
Università degli Studi di Trento, Italy
107/110
Affiliation

Science

Category
Host institution
Employer
2022/06/06 - 2027/06/05 Contracted Researcher (Research) Universidade de Coimbra Centro de Estudos Sociais, Portugal

Others

Category
Host institution
Employer
2021/09/01 - 2022/05/30 Post-doctoral researcher Universidade de Coimbra Centro de Estudos Sociais, Portugal
2015/09 - 2021/03 PhD candidate Universidade de Coimbra, Portugal
Universidade de Coimbra Centro de Estudos Sociais, Portugal
Projects

Grant

Designation Funders
2015/10 - 2019/10 PhD research "Chroniqueers. Time, care and visibility in narratives from queer people with a chronic illness"
PD/BD/114078/2015
PhD Candidate
Universidade de Coimbra Centro de Estudos Sociais, Portugal
Fundação para a Ciência e a Tecnologia
Concluded

Contract

Designation Funders
2022/06/06 - 2027/06/05 DIVERS - Diversity and inclusion in healthcare
2021.03925.CEECIND
Principal investigator
Universidade de Coimbra Centro de Estudos Sociais, Portugal
Fundação para a Ciência e a Tecnologia
Ongoing

Other

Designation Funders
2022/01/01 - 2024/12/31 REMEMBER - Vivências de Pessoas LGBTQ Idosas no Portugal Democrático (1974-2020)
Researcher
Universidade de Coimbra Centro de Estudos Sociais, Portugal
Fundação para a Ciência e a Tecnologia
Ongoing
Outputs

Publications

Book
  1. Mara Pieri. LGBTQ+ People with Chronic Illness. 2023.
    10.1007/978-3-031-22071-5
Book chapter
  1. Pieri, Mara. "Bem-estar das pessoas LGBTQ* com doença crónica: entre (in)visibilidade e precariedade". In Investigação e prática: abordagens interdisciplinares sobre a saúde e o bem-estar das pessoas LGBTI+, edited by Ana Sofia Antunes das Neves, 231-251. Portugal, 2022.
    Published
  2. Pieri, Mara. "Multiple estrangements in the twilight zone: chronic illness and queerness in Southern Europe". In The Sage Handbook of Global Sexualities, edited by Davy, Zowie; Santos, Ana Cristina; Bertone, Chiara; Thoreson, Ryan; Wieringa, Saskia E., 386-403. London, United Kingdom: SAGE, 2020.
    Published
  3. Pieri, Mara; Santos, Ana Cristina. "My body, my rules? Self-determination and feminist collective action in Southern Europe". In Routledge Handbook of Contemporary European Social Movements, edited by Flesher Fominaya, Cristina; Feenstra, Ramon A., 196-209. London, United Kingdom: Routledge, 2019.
    Published
  4. Pieri, Mara. "Are we humans or are we (queer) dancers? The Fascinating Paradox of Queer Rights". In As sociedades contemporâneas e os direitos humanos = Contemporary societies and human rights, edited by Martins, Bruno Sena, 415-436. EDITUS, 2018.
    Published • 10.7476/9788574555256.0021
Journal article
  1. Esteves, Mafalda; Pieri, Mara. "At the Fringes of Pride Politics. Experiences of Bisexual and Chronically Ill LGBTQ+ People in Portugal". Lambda Nordica 28 2-3 (2023): 82-110. https://www.lambdanordica.org/index.php/lambdanordica/article/view/897.
    Open access • Published
  2. Pieri, Mara; Martins, Bruno Sena. "Entre mundos e lutas: identidades, interseccionalidades e resistência incorporada". Horizontes - Revista De Educação 11 18 (2022): 63-79. https://ojs.ufgd.edu.br/index.php/horizontes/article/view/16598.
    Open access • Published
  3. Pieri, Mara; Ferrero Camoletto Raffaella. "Doing gender and sexuality through experiences of illness and aging: between dominant and counter-discourses". About Gender - International Journal of Gender Studies 11 22 (2022): https://riviste.unige.it/index.php/aboutgender/article/view/2031.
    Open access • Published
  4. Pieri, Mara. "Fare ricerca su malattia cronica e vissuti LGBTQ+: riflessioni dal campo". AG About Gender - International Journal of Gender Studies 11 21 (2022): https://riviste.unige.it/index.php/aboutgender/article/view/1994.
    Open access • Published
  5. Mara Pieri. "When vulnerability got mainstream: Reading the pandemic through disability and illness". European Journal of Women's Studies (2022): https://doi.org/10.1177/13505068221090424.
    10.1177/13505068221090424
  6. Pieri, Mara. "Persone LGBTQ+ con malattia cronica in Italia: tra precarietà, cura e (in)visibilità". Salute e Società 2022 2 (2022): 84-97. https://www.francoangeli.it/riviste/SchedaRivista.aspx?IDArticolo=70828&Tipo=Articolo%20PDF&lingua=it&idRivista=107.
    Published
  7. Mara Pieri; Joana Brilhante. "“The Light at the End of the Tunnel”: Experiences of LGBTQ+ Adults in Portuguese Healthcare". Healthcare (2022): https://doi.org/10.3390/healthcare10010146.
    10.3390/healthcare10010146
  8. Pieri, Mara. "Elephants in the room: chronically ill people and access to LGBTQA+ spaces". Intersectional Perspectives: Identity, Culture, and Society 0 1 (2021): 12. http://dx.doi.org/10.18573/ipics.35.
    Published • 10.18573/ipics.35
  9. Ana Cristina Santos; Mara Pieri. "Recolocando a autodeterminação na equação? Uma análise da ação coletiva feminista na Europa do Sul". Revista Em Pauta 19 47 (2020): https://doi.org/10.12957/rep.2021.56089.
    Published • 10.12957/rep.2021.56089
  10. Pieri, Mara. "Illness comes to bed. Chronically ill lesbian women discuss sex, intimacy, and sexual practices". Journal of Lesbian Studies (2020): 1-15. http://dx.doi.org/10.1080/10894160.2020.1778882.
    Published • 10.1080/10894160.2020.1778882
  11. Pieri, Mara. "Italia, 2030. Immaginare un futuro queer-crip". Roots & Routes 10 34 (2020): https://www.roots-routes.org/italia-2030-immaginare-un-futuro-queer-crip%e2%80%a8-di-mara-pieri/.
    Published
  12. Pieri, Mara. "The Sound that You Do Not See. Notes on Queer and Disabled Invisibility". Sexuality & Culture 23 2 (2019): 558-570. https://doi.org/10.1007/s12119-018-9573-8.
    Published • 10.1007/s12119-018-9573-8
  13. Mara Pieri; Bruno Sena Martins. "Entre mundos e lutas: identidades, interseccionalidade e resistência incorporada". Horizontes - Revista de Educação (2002): https://doi.org/10.30612/hre.v11i18.16598.
    10.30612/hre.v11i18.16598
Magazine article
  1. Pieri, Mara. "Salute e diversità: le questioni LGBTQ+ nel sistema sanitario", Rivista QCode, 2022
Report
  1. Pieri, Mara; Gomes, Conceição; Nolasco, Carlos; Carolina Carvalho; Carla Barros; Carla Soares; Fontes, Fernando; Henriques, Marina; Fernando, Paula. 2023. Franet National contribution to the Fundamental Rights Report 2023: Portugal. https://fra.europa.eu/sites/default/files/fra_uploads/frr_2023_portugal_en.pdf.
Website
  1. Pieri, Mara. Chroniqueers. 2020. http://chroniqueers.it.

Other

Other output
  1. Pazienti e utenti LGBTQ+ con malattie croniche. Costruire pratiche inclusive nell'accesso alla salute. Handbook for healthcare professionals "LGBTQ+ patients and users with chronic illnesses. Building inclusive practices in access to healthcare".. 2020. Pieri, Mara. http://chroniqueers.it/uploads/Guida_Chroniqueers_hq.pdf.
Activities

Oral presentation

Presentation title Event name
Host (Event location)
2024/02/02 Malattie croniche e accessibilità: le trame dell’invisibilità TESTI PER IL FUTURO ALTERNATIVI Riflessioni e azioni verso l’accessibilità sostenibile
Spazio KOR, Fondazione Fitzcarraldo (Italy)
2023/11/06 LGBTQ+ ageing people with chronic illness Ageing with Pride: Healthcare for Older LGBTI people in Europe
Council of Europe
2023/09/28 Hic Sunt Chroniqueers: queering time, ageing and vulnerability Midterm Conference of the European Sociological Association Research Network Sexuality (RN23)
University of Zagreb (Zagreb, Croatia)
2023/05/22 Twenty minutes at a time: queer-crip chronopolitics Queer dis-eases: disruptive histories, politics, and bodies
European University Institute (Florence, Italy)
2023/05/12 Persone trans e non-binarie con malattia e disabilità: intersezioni sommerse Il benessere psicologico delle persone trans* nei contesti di vita
university of Cagliari (Cagliari, Italy)
2023/04/04 We do it together: diálogos entre profissionais de saúde e comunidade LGBTQ+ XII Congresso Nacional de Sociologia
FEUC-UC (Coimbra, Portugal)

Supervision

Thesis Title
Role
Degree Subject (Type)
Institution / Organization
2021 - 2023 Political Participation, Social Movements and Promotion of LGBTQIA+ Rights - The role of LGBTQIA+ social movements/ associations in the advocacy of transgender healthcare in Portugal and France
Supervisor of Maria Carolina Raposo
Universidade de Coimbra Faculdade de Economia, Portugal
2021 - 2023 PiùLGBTQ: ispirazioni europee per innovare la promozione della salute LGBTQIA+ tra attivismo e istituzioni in Italia
Co-supervisor
Università degli Studi di Bologna Dipartimento di Scienze Politiche e Sociali, Italy

Event organisation

Event name
Type of event (Role)
Institution / Organization
2022/09/01 - 2023/09/30 Monsters Summer School III "Tracing, remembering and reclaiming queer lives " (2023/09/18 - 2023/09/22)
Other
Universidade de Coimbra Centro de Estudos Sociais, Portugal
2019/01 - 2023/07 Seminar Series "SHARP TALKS: Sexuality, health and Human Rights" (2019/02/20 - 2023/07/20)
Other (Member of the Organising Committee)
Universidade de Coimbra Centro de Estudos Sociais, Portugal
2023/06/01 - 2023/06/02 TRANSforming Endometriosis Research. Intensive workshop for an interdisciplinary understanding of endometriosis in the trans population from a socio-medical perspective. (2023/06/01 - 2023/06/02)
Workshop (Co-organisor)
Fondation Brocher, Switzerland
2020/09 - 2021/05 Sexuality Research Network Online Seminar Series Spring 2021 (2021/01/26 - 2021/05/25)
Other (Member of the Organising Committee)
European Sociological Association, France
2019 - 2020 CES Vai à Escola: "Todas diferentes, todas iguais! Valorizar as diferenças e crescer com a diversidade" - session of education for students in primary and secundary schools. (2019 - 2020) Universidade de Coimbra Centro de Estudos Sociais, Portugal
2017 - 2018 Summer School "The Good, the Bad and the Monster: queers, crips and (other) misfits off the edge of the map" (2018/05/14 - 2018/05/18)
Other (Member of the Organising Committee)
Universidade de Coimbra Centro de Estudos Sociais, Portugal

Committee member

Activity description
Role
Institution / Organization
2017 - Current Member of the board of the Sexuality Research Network (RN23)
Member
European Sociological Association, France
2018/07 - 2023/04 Coordination of the Research Stream on Sexuality and Gender
Coordinator
Associação Portuguesa de Sociologia, Portugal

Conference scientific committee

Conference name Conference host
2024/10/02 - 2024/10/04 Maricorners 2024: IV congreso internacional de estudios interdisciplinares LGTBIAQ+ en español Universidad de Valladolid
2018/02/13 - 2018/02/14 MidTerm Conference of the Sexuality Research Network - European Sociological Association University of Cracow

Course / Discipline taught

Academic session Degree Subject (Type) Institution / Organization
2023/12/13 - 2023/12/13 Master GEDM - Gender, Equality, Diversity and Inclusion XI edition Invecchiamento e generazioni (Master) Fondazione Giacomo Brodolini, Italy

Interview (newspaper / magazine)

Activity description Newspaper / Forum
2022/12/10 Interview titled "A Sexualidade e acesso à Saúde - uma entrevista à investigadora Mara Pieri" Revista A Salto

Interview (tv / radio show)

Program Topic
2023/05/17 - 2023/05/17 IntervistAutori Book "LGBTQ+ people with chronic illness. Chroniqueers in Southern Europe"

Scientific expedition

Activity description Institution / Organization
2022/04/05 - 2022/06/05 Visiting scholar Università degli Studi di Torino, Italy
Distinctions

Award

2022 Menção Honrosa para Melhor Tese de Doutoramento em Estudos Culturais, Prémio "Virginia Quaresma"
Universidade de Aveiro Centro de Línguas Literaturas e Culturas, Portugal
2020 Premio "Controtempo" per la divulgazione di progetti di ricerca
CODICI Ricerca e Intervento cooperativa sociale onlus, Italy
2011 "M.Baiocchi" National Prize for best MA Thesis on LGBT issues
DìGay Project, Italy