Identification
Personal identification
- Full name
- Vanessa Miriam dos Reis Ferreira
Citation names
- Ferreira, Vanessa
- dos Reis Ferreira, Vanessa
Author identifiers
- Ciência ID
- AE1C-D277-D07E
Addresses
- Faculdade de Ciências e Tecnologia da Universidade Nova de Lisboa. Quinta da Torre, Campus Universitário, 2829-516, Caparica,, Almada, Portugal (Professional)
Websites
- https://www.linkedin.com/in/vanessadosreisferreira/ (Personal)
- https://worldcdg.org/ (Professional)
- http://www.researchcdg.com/ (Professional)
- http://www.apcdg.com/ (Professional)
Knowledge fields
- Medical and Health Sciences - Basic Medicine - Immunology
- Medical and Health Sciences - Medical Biotechnology - Health-Related Biotechnology
- Medical and Health Sciences - Health Sciences - Social Biomedical Sciences
- Medical and Health Sciences - Other Medical Sciences
- Social Sciences - Other Social Sciences
Languages
Language | Speaking | Reading | Writing | Listening | Peer-review |
---|---|---|---|---|---|
Spanish; Castilian (Mother tongue) | |||||
Portuguese (Mother tongue) | |||||
French | Advanced (C1) | Advanced (C1) | Advanced (C1) | Advanced (C1) | Upper intermediate (B2) |
English | Proficiency (C2) | Proficiency (C2) | Proficiency (C2) | Proficiency (C2) | Proficiency (C2) |
Education
Degree | Classification | |
---|---|---|
2012/09/01 - 2014/06/01
Concluded
|
International MBA (Master Universitario)
Sorbonne Graduate Business School, France
|
|
2005/09/01 - 2010/11/01
Concluded
|
Cell and Developmental Biology (Doktor (PhD))
Centre de Regulació Genòmica, Spain
|
|
2003/09/01 - 2004/09/01
Concluded
|
Pedagogical Aptitude Certificate (CAP) (Diplôme d´études supérieures)
Universidad de Extremadura - Campus Badajoz, Spain
|
|
1997/09/01 - 2003/09/01
Concluded
|
Biology (Licence)
Major in MsC
Universidad de Extremadura - Campus Badajoz, Spain
|
|
2001/09/01 - 2002/09/01
Concluded
|
Biochemistry (Maîtrise)
University of Montpellier II, France
|
Affiliation
Science
Category Host institution |
Employer | |
---|---|---|
2021/01/01 - Current | Coordinating Researcher (Research) | UCIBIO Nova School of Science and Technology, FCT NOVA , Portugal |
UCIBIO Nova School of Science and Technology, FCT NOVA , Portugal | ||
2016/01/01 - Current | Coordinating Researcher (Research) | CDG & Allies Professionals and Patient Associations International Network (CDG & Allies PPAIN), Portugal |
UCIBIO Nova School of Science and Technology, FCT NOVA , Portugal |
Others
Category Host institution |
Employer | |
---|---|---|
2019 - Current | World CDG Organization Founder and Coordinator | World CDG Organization, Portugal |
2010/01/01 - Current | President and founder Association | Portuguese Association for CDG (APCDG), Portugal |
Projects
Grant
Designation | Funders | |
---|---|---|
2019 - Current | Frontiers in Congenital Disorders of Glycosylation (FCDGC)
Researcher
|
National Institutes of Health, United States
Ongoing
|
2018 - Current | EUROGLYCAN-omics, under the frame of E-Rare-3, the ERA-Net for Research on Rare Diseases
3M180250
Researcher
|
Other
Designation | Funders | |
---|---|---|
2018 - Current | Towards therapeutic approaches for Human Glycosylation Disorders through immunological characterization
SFRH/BD/138647/2018
Supervisor
Fundação para a Ciência e a Tecnologia, Portugal
|
Ongoing
|
2017/03/01 - Current | Deciphering immunological aspects of Congenital Disorders of Glycosylation (CDG) using a multidisciplinary approach
SFRH/BD/124326/2016
Supervisor
Fundação para a Ciência e a Tecnologia, Portugal
|
Fundação para a Ciência e a Tecnologia
Ongoing
|
Outputs
Publications
Book chapter |
|
Conference abstract |
|
Conference poster |
|
Journal article |
|
Activities
Oral presentation
Presentation title | Event name Host (Event location) |
|
---|---|---|
2021 | From rare disease families and professional challenges, to data science, AI and data integration: 7 secrets for life changing solutions |
MSI Seminar, Université Côte d'Azur
|
2017 | How Patient Centricity shapes the Future of Healthcare in Portugal: Results from CDG & Allies PPAIN | |
2015 | Vanessa Ferreira - Portuguese Association for CDG: Addressing the needs of the community | 2nd World Conference on CDG
Portuguese Association for CDG
|
Event organisation
Event name Type of event (Role) |
Institution / Organization | |
---|---|---|
2016 - Current | World CDG Awareness Day (2021) | |
2021 - 2021 | 5th World Conference on CDG (2021 - 2021) | |
2019 - 2019 | 4th World Conference on CDG (2019 - 2019) | |
2018 - 2018 | Educational Program of Excellence on Congenital Disorders of Glycosylation, Think Metabolic, Think CDG Academy (2018 - 2018) | |
2017 - 2017 | 3rd World Conference on CDG (2017 - 2017)
Conference (Co-organisor)
|
|
2016 - 2016 | Educational Program of Excellence on Congenital Disorders of Glycosylation, Think Metabolic, Think CDG Academy (2016 - 2016) | |
2015 - 2015 | 2nd World Conference on CDG (2015 - 2015) | |
2014 - 2014 | Coordination II Symposium on rare diseases – Joining all stakeholders to discuss Human Genetic Diseases (2014 - 2014) | |
2013 - 2013 | 1st World Conference on CDG (2013 - 2013)
Conference (Co-organisor)
|
|
2012 - 2012 | Symposium on Rare Diseases: “Assessing the involvement of all stakeholders to improve healthcare (2012) (2012 - 2012) |
Event participation
Activity description Type of event |
Event name Institution / Organization |
|
---|---|---|
2020/09 - 2020/10 | Noite europeia do Investigador 2020 - Os açúcares RARAMENTE fazem Mal?! Os açucares são muito abundantes na natureza. Podem ser mais ou menos complexos e ter muitas funções. Recentemente, o seu papel negativo na saúde tem tido maior visibilidade, mas...será sempre assim? Sugars are very abundant in nature. They can be more or less complex and have many different functions. Recently, their negative role in health has become more visible, but...will it remain that way? | Noite europeia do Investigador 2020 |
Association member
Society Organization name | Role | |
---|---|---|
2017 - Current | Member of the patient board and the patient steering committee at the European Reference Network for rare metabolic diseases (MetabERN) | |
2010/01/01 - Current | APCDG-DMR is led by affected family members that volunteer in an altruistic manner. We are a nonprofit-organization aimed at fostering breakthrough research that make an important difference in the lives of patients and their family members. Our actions are performed at the national and international level. | President and Founder |
Interview (newspaper / magazine)
Activity description | Newspaper / Forum | |
---|---|---|
2020 | A minha irmã vive com a forma mais comum de CDG | Atlas da Saúde |
2020 | Vanessa Ferreira caminha na Via Algarviana para angariar fundos para investigação em doenças raras | PlanetAlgarve |
2019 | Patients as partners-paving the way for scientific discoveries | Rare Revolution Magazine |
Interview (tv / radio show)
Program | Topic | |
---|---|---|
2020/07 - Current | Júlia Pinheiro | Experiência de vida |
Distinctions
Other distinction
2006 | PhD Research Studentship |
2001 | Erasmus scholarship |