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ELSA DO CÉU DIAS DE ALMEIDA FRAZÃO MATEUS. Completed the PhD in Anthropology (Anthropology of Health) in 2015/10/02 by Universidade de Lisboa Instituto de Ciências Sociais, MA Phil. in Social and Cultural Anthropology in 2010 by Universidade de Lisboa Instituto de Ciências Sociais and BA in Anthropology in 1993 by Universidade Nova de Lisboa Faculdade de Ciências Sociais e Humanas. Is Patient Expert in Research & Development of Medicines in Liga Portuguesa Contra as Doenças Reumáticas, Patient Research Partner in European League Against Rheumatism, Vice-President in European League Against Rheumatism, Researcher in Universidade Nova de Lisboa Comprehensive Health Research Centre, President in Associação EUPATI Portugal and Member of the Administration Board in COLABTRIALS - Laboratório Colaborativo para a Inovação em Ensaios Clínicos. Published 24 articles in journals. Has 5 section(s) of books and 2 book(s). Has received 2 awards and/or honors. Participates and/or participated as Other in 2 project(s) and PhD Student Fellow in 1 project(s). Works in the area(s) of Social Sciences with emphasis on Anthropology. In her curriculum Ciência Vitae the most frequent terms in the context of scientific, technological and artistic-cultural output are: Thesis/dissertations - 2015; Social Sciences: Sociology/Anthropology; Zoonosis; Risk; Food safety; Eating habits; Health; Medical Anthropology; Rheumatology; Non-pharmacological interventions; Rheumatoid arthritis; Recommendations.; Antirheumatic agents; Autoimmune diseases; Epidemiology; Glucocorticoids; Health care; Outcome assessment; Arthritis, Juvenile; COVID-19; Vaccination; Immunology and Allergy; Immunology; SDG 3 - Good Health and Well-being; ankylosing; arthritis; health care; outcome and process assessment; psoriatic; rheumatoid; spondylitis; seniors; rheumatic diseases; technology; smartphone; .
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Identificação

Identificação pessoal

Nome completo
ELSA DO CÉU DIAS DE ALMEIDA FRAZÃO MATEUS

Nomes de citação

  • Mateus, Elsa
  • Mateus, Elsa Frazão
  • Mateus, E
  • Mateus, E.F.

Identificadores de autor

Ciência ID
8011-005D-3B70
ORCID iD
0000-0003-0059-2141

Domínios de atuação

  • Ciências Médicas e da Saúde - Outras Ciências Médicas - Outras Áreas das Ciências Médicas
  • Ciências Sociais - Sociologia - Antropologia

Idiomas

Idioma Conversação Leitura Escrita Compreensão Peer-review
Inglês Utilizador proficiente (C2) Utilizador proficiente (C2) Utilizador proficiente (C2) Utilizador proficiente (C2) Utilizador proficiente (C2)
Francês Utilizador elementar (A1) Utilizador proficiente (C1) Utilizador independente (B1) Utilizador elementar (A1)
Espanhol; Castelhano Utilizador elementar (A1) Utilizador proficiente (C1) Utilizador elementar (A1) Utilizador elementar (A1)
Formação
Grau Classificação
2017/05/10 - 2017/05/10
Frequentou
 Workshop Evidência do Mundo Real (Real World Evidence) (Outros)
Universidade de Lisboa Centro de Estudos de Medicina Baseada na Evidência, Portugal
2016/03/31 - 2016/04/01
Concluído
 EULAR course on Health Economics in Rheumatology (Outros)
European League Against Rheumatism, Suiça
2014/10/01 - 2015/12/16
Concluído
 Patients and Patient Representatives on the Medicines Research & Development Process (Outros)
European Patients' Forum, Bélgica
2015/10/02
Concluído
 PhD in Anthropology (Anthropology of Health) / II Curso de Doutoramento em Antropologia (Doutoramento)
Universidade de Lisboa Instituto de Ciências Sociais, Portugal
"Ervas que curam. Da "Terra das Ervanárias" à produção de plantas medicinais e de conhecimento." (TESE/DISSERTAÇÃO)
 18 (dezoito) valores
2013/11/04 - 2013/11/05
Concluído
 Patient Research Partner (Outros)
European League Against Rheumatism, Suiça
2012/06/02 - 2012/06/30
Concluído
 Practical Course of Professional Training: Production, Collection, Drying, Distillation and Marketing Curso Prático de Formação Profissional de Produção, Recolha, Secagem, Destilação e Comercialização de Plantas Aromáticas e Óleos Essenciais em A.B. (Outros)
Associação Portuguesa de Agricultura Biológica, Portugal
2010/03/02 - 2010/04/06
Concluído
 Post-Graduation Course Update in Ethnopharmacology / Curso Pós-Graduado de Atualização em Etnofarmacologia (Pós-Graduação)
Especialização em Ethnopharmacology / Etnofarmacologia
Universidade de Lisboa Faculdade de Farmácia, Portugal
2010
Concluído
 MA Phil. in Social and Cultural Anthropology / Curso de Mestrado em Antropologia Social e Cultural (Mestrado)
Universidade de Lisboa Instituto de Ciências Sociais, Portugal
"Animais à Mesa. Zoonoses e Estratégias no Consumo de Carne" (TESE/DISSERTAÇÃO)
 17 valores (Muito Bom)
2009/09/28 - 2009/10/01
Concluído
 Summer School "A Walk On the Wild Side of Knowledge Transfer" (Outros)
Universidade de Lisboa - UL Inovar, Unidade de Transferência de Conhecimento / Knowledge Transfer Unit , Portugal
2009/04/14 - 2009/06/30
Concluído
 Free Course of History of Health Sciences / I Curso Livre de História das Ciências da Saúde «Corpo, Saúde e Práticas Médicas ao Longo dos Séculos» (Outros)
Universidade de Lisboa Centro de História, Portugal

Universidade de Lisboa Departamento de História e Filosofia das Ciências, Portugal

Universidade de Évora, Portugal
1989 - 1993
Concluído
 BA in Anthropology / Antropologia (Licenciatura)
Universidade Nova de Lisboa Faculdade de Ciências Sociais e Humanas, Portugal
"O Rio Tejo e os Avieiros da Póvoa de Santa Iria: uma Comunidade em Mudança" (TESE/DISSERTAÇÃO)
 15 valores (Bom)
Percurso profissional

Ciência

Categoria Profissional
Instituição de acolhimento 		Empregador
2018/01/18 - Atual Investigador (Investigação) Universidade Nova de Lisboa Comprehensive Health Research Centre, Portugal

Outras Carreiras

Categoria Profissional
Instituição de acolhimento 		Empregador
2004/01/01 - 2005/02/28 Coordenador de Projeto (Categorias e Funções Especificas) S.J. - Educação, Formação e Informática, Lda. - Educação XXI Ribatejo e Oeste, Portugal
1991/10/01 - 2001/08/31 Professor do ensino básico e secundário (Professor do ensino básico e secundário) Ministério da Educação, Portugal

Cargos e Funções

Categoria Profissional
Instituição de acolhimento 		Empregador
2024/07/31 - Atual Member CEIC - Comissão de Ética para a Investigação Científica, Portugal
CEIC - Comissão de Ética para a Investigação Científica, Portugal
2017/11/10 - Atual Presidente Associação EUPATI Portugal, Portugal
2015/01/31 - Atual Presidente Liga Portuguesa Contra as Doenças Reumáticasp, Portugal
2021/06/05 - 2025/06/14 Vice-Presidente European League Against Rheumatism, Suiça
European League Against Rheumatism, Suiça

Outros

Categoria Profissional
Instituição de acolhimento 		Empregador
2014/09/14 - Atual Patient Expert in Research & Development of Medicines Liga Portuguesa Contra as Doenças Reumáticas, Portugal
2013/11/04 - Atual Patient Research Partner European League Against Rheumatism, Suiça
2021 - 2023 Member of the Administration Board COLABTRIALS - Laboratório Colaborativo para a Inovação em Ensaios Clínicos, Portugal
Universidade de Évora Escola Superior de Enfermagem de São João de Deus, Portugal
2017/01/01 - 2020/12/31 Consultant as Patient Expert, and for Patients' Involvement in Research / Consultadoria para Envolvimento da Perspetiva do Doente na Investigação European League Against Rheumatism, Suiça
European League Against Rheumatism, Suiça
2003/09/10 - 2005/02/28 ITC Trainer (Basic ITC Competences: MS Windows, MS Office, Internet, and e-mail) / Formadora de Informática S.J. - Educação, Formação e Informática, Lda. - Educação XXI Ribatejo e Oeste, Portugal
Projetos

Bolsa

Designação Financiadores
2020/01/26 - Atual HIPPOCRATES - Health initiatives in Psoriasis and PsOriatic arthritis ConsoRTium European States
101007757
Member of the Patient Advisory Council
European League Against Rheumatism, Suiça
 Innovative Medicines Initiative
Em curso
2023 - 2026 PULPIT - PUbLic and Patient InvolvemenT in Interprofessional Education of Undergraduate Healthcare Students
2023-1-PT01-KA220-HED-000165015
Investigador
Escola Superior de Enfermagem de Lisboa, Portugal
 Erasmus Plus
Em curso
2017/01/01 - 2020/12/31 HARMONIzation and integrative analysis of regional, national and international Cohorts on primary Sjögren’s Syndrome (pSS) towards improved stratification, treatment and health policy making
731944
Outra
European League Against Rheumatism, Suiça
 EU Framework Programme for Research and Innovation Societal Challenges
Concluído
2010/01/01 - 2014/12/31 Ervas que curam: da "terra das ervanárias" à produção de plantas medicinais e de conhecimento
SFRH/BD/65700/2009
Bolseiro de Doutoramento
Universidade de Lisboa Instituto de Ciências Sociais, Portugal
 Fundação para a Ciência e a Tecnologia
Concluído

Projeto

Designação Financiadores
2021/04/01 - 2023/07/31 Mobile Patient-centred System to Improve Drug Trials and Care of Older Adults with Rheumatic Diseases
AAL/0008/2020
Universidade Nova de Lisboa, Portugal

Universidade Nova de Lisboa Comprehensive Health Research Centre, Portugal
Fundação para a Ciência e a Tecnologia
Em curso
Produções

Publicações

Artigo em revista
  1. Navasardyan, Nare; Henriques, Ana; Bernardes, Sónia; Mateus, Elsa; Talih, Makram; Lucas, Raquel. "Long-term back pain recall in Generation XXI adolescents: the role of sensitivity and pain history". PAIN Reports 10 3 (2025): e1272. https://doi.org/10.1097/pr9.0000000000001272.
    Publicado • 10.1097/pr9.0000000000001272
  2. Pedro Matias; Ricardo Araújo; Ricardo Graça; Ana Rita Henriques; David Belo; Maria Valada; Nasim Nakhost Lotfi; et al. "COTIDIANA Dataset – Smartphone-Collected Data on the Mobility, Finger Dexterity, and Mental Health of People With Rheumatic and Musculoskeletal Diseases". IEEE Journal of Biomedical and Health Informatics (2024): https://doi.org/10.1109/JBHI.2024.3456069.
    10.1109/JBHI.2024.3456069
  3. Bayram Farisogullari; Saskia Lawson-Tovey; Kimme L Hyrich; Laure Gossec; Loreto Carmona; Anja Strangfeld; Elsa F Mateus; et al. "Factors associated with disease flare following SARS-CoV-2 vaccination in people with inflammatory rheumatic and musculoskeletal diseases: results from the physician-reported EULAR Coronavirus Vaccine (COVAX) Registry". Annals of the Rheumatic Diseases (2024): https://doi.org/10.1136/ard-2024-225869.
    10.1136/ard-2024-225869
  4. Ricardo J. O. Ferreira; Matilde Leal; Elsa Frazão Mateus; Lucija Gosak; Matthijs H. Bosveld; Cathy C. Kline. "Letter to the Editor: Best Practices on Public and Patient Involvement in Interprofessional Healthcare Education". Health Expectations (2024): https://doi.org/10.1111/hex.70053.
    10.1111/hex.70053
  5. Jinoos Yazdany; Anna Ware; Zachary Wallace; Suleman Bhana; Rebecca Grainger; ERIC HACHULLA; Christophe Richez; et al. "Impact of Risk Factors on COVID-19 Outcomes in Unvaccinated People With Rheumatic Diseases: A Comparative Analysis of Pandemic Epochs Using the COVID-19 Global Rheumatology Alliance Registry". Arthritis Care & Research (2023): http://dx.doi.org/10.1002/acr.25220.
    10.1002/acr.25220
  6. Sepriano, Alexandre; van Dijk, Bastiaan; Ramiro, Sofia; van der Helm-van Mil, Annette; Combe, Bernard; van Schaardenburg, Dirkjan; de Wit, Maarten; et al. "Distinction and prognosis of early arthritis phenotypes: an analysis in three European cohorts". RMD Open 9 4 (2023): e003611. http://dx.doi.org/10.1136/rmdopen-2023-003611.
    Publicado • 10.1136/rmdopen-2023-003611
  7. Pedro Machado; Martin Schäfer; Satveer K Mahil; Jean Liew; Laure Gossec; Nick Dand; Alexander Pfeil; et al. "Characteristics associated with poor COVID-19 outcomes in people with psoriasis, psoriatic arthritis and axial spondyloarthritis: data from the COVID-19 PsoProtect and Global Rheumatology Alliance physician-reported registries". Annals of the Rheumatic Diseases (2023): http://dx.doi.org/10.1136/ard-2022-223499.
    10.1136/ard-2022-223499
  8. Manuel Francisco Ugarte-Gil; Graciela Alarcon; Andrea M. Seet; Zara Izadi; Anna Ware; Ali Duarte-Garcia; Emily L. Gilbert; et al. "Association Between Race/Ethnicity and COVID-19 Outcomes in Systemic Lupus Erythematosus Patients From the United States: Data From the COVID-19 Global Rheumatology Alliance". Arthritis Care & Research (2023): http://dx.doi.org/10.1002/acr.25039.
    10.1002/acr.25039
  9. Kanon Jatuworapruk; Anna Ware; Milena Gianfrancesco; R Conway; Laura Durcan; Elizabeth Graef; Arundathi Jayatilleke; et al. "Characteristics and Outcomes of People With Gout Hospitalized Due to COVID-19: Data From the COVID-19 Global Rheumatology Alliance Physician-Reported Registry". ACR Open Rheumatology (2022): http://dx.doi.org/10.1002/acr2.11495.
    10.1002/acr2.11495
  10. Lianne Kearsley-Fleet; MIN-LEE CHANG; Saskia Lawson-Tovey; Ruth Costello; Šárka Fingerhutová; Natálie Švestková; Belot a; et al. "Outcomes of SARS-CoV-2 infection among children and young people with pre-existing rheumatic and musculoskeletal diseases". Annals of the Rheumatic Diseases (2022): http://dx.doi.org/10.1136/annrheumdis-2022-222241.
    10.1136/annrheumdis-2022-222241
  11. Manuel Francisco Ugarte-Gil; Graciela Alarcon; Zara Izadi; Ali Duarte-Garcia; Cristina Reategui-Sokolova; Ann Elaine Clarke; Leanna Wise; et al. "Characteristics associated with poor COVID-19 outcomes in individuals with systemic lupus erythematosus: data from the COVID-19 Global Rheumatology Alliance". Annals of the Rheumatic Diseases (2022): http://dx.doi.org/10.1136/annrheumdis-2021-221636.
    10.1136/annrheumdis-2021-221636
  12. Iain B McInnes; Annamaria Iagnocco; Daniel Aletaha; Xenofon Baraliakos; Johannes WJ Bijlsma; Elsa F Mateus; Zoltan Szekanecz; Theodora P M Vliet Vlieland; Josef S Smolen. "Reflections on a contemporary European tragedy". Annals of the Rheumatic Diseases 81 6 (2022): 747-748. https://doi.org/10.1136/annrheumdis-2022-222652.
    10.1136/annrheumdis-2022-222652
  13. Michael Putman; Kevin Kennedy; Emily Sirotich; Jean W Liew; Sebastian E Sattui; Tarin T Moni; Akpabio A Akpabio; et al. "COVID-19 vaccine perceptions and uptake: results from the COVID-19 Global Rheumatology Alliance Vaccine Survey". The Lancet Rheumatology (2022): http://dx.doi.org/10.1016/s2665-9913(22)00001-7.
    10.1016/s2665-9913(22)00001-7
  14. Mateus, Elsa. "SARS-CoV-2 infection after vaccination in patients with inflammatory rheumatic and musculoskeletal diseases". Annals of the Rheumatic Diseases 81 1 (2022): 145-150. http://dx.doi.org/10.1136/annrheumdis-2021-221217.
    10.1136/annrheumdis-2021-221217
  15. Izadi, Zara; Gianfrancesco, Milena A.; Aguirre, Alfredo; Strangfeld, Anja; Mateus, Elsa F.; Hyrich, Kimme L.; Gossec, Laure; et al. "Development of a Prediction Model for COVID-19 Acute Respiratory Distress Syndrome in Patients With Rheumatic Diseases". (2022): http://hdl.handle.net/10362/143544.
    https://doi.org/10.1002/acr2.11481
  16. Lawson-Tovey, Saskia; Machado, Pedro M.; Strangfeld, Anja; Mateus, Elsa; Gossec, Laure; Carmona, Loreto; Raffeiner, Bernd; et al. "SARS-CoV-2 vaccine safety in adolescents with inflammatory rheumatic and musculoskeletal diseases and adults with juvenile idiopathic arthritis". (2022): http://hdl.handle.net/10362/143607.
    https://doi.org/10.1136/rmdopen-2022-002322
  17. Izadi, Zara; Gianfrancesco, Milena A.; Schmajuk, Gabriela; Jacobsohn, Lindsay; Katz, Patricia; Rush, Stephanie; Ja, Clairissa; et al. "Environmental and societal factors associated with COVID-19-related death in people with rheumatic disease: an observational study". (2022): http://hdl.handle.net/10451/54425.
    10.1016/S2665-9913(22)00192-8
  18. Pedro M Machado; Saskia Lawson-Tovey; Anja Strangfeld; Elsa F Mateus; Kimme L Hyrich; Laure Gossec; Loreto Carmona; et al. "Safety of vaccination against SARS-CoV-2 in people with rheumatic and musculoskeletal diseases: results from the EULAR Coronavirus Vaccine (COVAX) physician-reported registry". Annals of the Rheumatic Diseases (2021): annrheumdis--2021--2-annrheumdis--2021--2. https://doi.org/10.1136/annrheumdis-2021-221490.
    10.1136/annrheumdis-2021-221490
  19. Mateus, Elsa. "Outcomes of COVID-19 in patients with primary systemic vasculitis or polymyalgia rheumatica from the COVID-19 Global Rheumatology Alliance physician registry: a retrospective cohort study". The Lancet Rheumatology 3 12 (2021): e855-e864. http://dx.doi.org/10.1016/s2665-9913(21)00316-7.
    10.1016/s2665-9913(21)00316-7
  20. Mateus, Elsa. "Association Between Tumor Necrosis Factor Inhibitors and the Risk of Hospitalization or Death Among Patients With Immune-Mediated Inflammatory Disease and COVID-19". JAMA Network Open 4 10 (2021): e2129639-e2129639. http://dx.doi.org/10.1001/jamanetworkopen.2021.29639.
    10.1001/jamanetworkopen.2021.29639
  21. Mateus, Elsa. "Immediate effect of the COVID-19 pandemic on patient health, health-care use, and behaviours: results from an international survey of people with rheumatic diseases". The Lancet Rheumatology 3 10 (2021): e707-e714. http://dx.doi.org/10.1016/s2665-9913(21)00175-2.
    10.1016/s2665-9913(21)00175-2
  22. Mateus, Elsa; Boonen, Annelies; Putrik, Polina; Marques, Mary Lucy; Alunno, Alessia; Abasolo, Lydia; Beaton, Dorcas; et al. "EULAR Points to Consider (PtC) for designing, analysing and reporting of studies with work participation as an outcome domain in patients with inflammatory arthritis". Annals of the Rheumatic Diseases 80 9 (2021): 1116-1123. http://dx.doi.org/10.1136/annrheumdis-2020-219523.
    10.1136/annrheumdis-2020-219523
  23. Mateus, Elsa. "EULAR COVID-19 registry: lessons learnt and future considerations". Annals of the Rheumatic Diseases 80 9 (2021): 1110-1115. http://dx.doi.org/10.1136/annrheumdis-2021-220319.
    10.1136/annrheumdis-2021-220319
  24. Jeffrey A. Sparks; Zachary S Wallace; Andrea M Seet; Milena A Gianfrancesco; Zara Izadi; Kimme Hyrich; Anja Strangfeld; et al. "Associations of baseline use of biologic or targeted synthetic DMARDs with COVID-19 severity in rheumatoid arthritis: Results from the COVID-19 Global Rheumatology Alliance physician registry". Annals of the Rheumatic Diseases (2021): http://dx.doi.org/10.1136/annrheumdis-2021-220418.
    10.1136/annrheumdis-2021-220418
  25. Garrido-Cumbrera, M.; Marzo-Ortega, H.; Christen, L.; Carmona, L.; Correa-Fernández, J.; Sanz-Gómez, S.; Plazuelo-Ramos, P.; et al. "POS1213 IMPACT OF THE COVID-19 PANDEMIC AND LOCKDOWN ON WELLBEING ON PATIENTS WITH RHEUMATIC DISEASES. RESULTS FROM THE REUMAVID STUDY (PHASE 1)". Annals of the Rheumatic Diseases 80 Suppl 1 (2021): 889.2-890. http://dx.doi.org/10.1136/annrheumdis-2021-eular.2396.
    10.1136/annrheumdis-2021-eular.2396
  26. Garrido-Cumbrera, M.; Marzo-Ortega, H.; Christen, L.; Carmona, L.; Correa-Fernández, J.; Sanz-Gómez, S.; Plazuelo-Ramos, P.; et al. "AB0677 GENDER DIFFERENCES ON THE IMPACT OF THE COVID-19 PANDEMIC AND LOCKDOWN IN PATIENTS WITH RHEUMATIC DISEASES. RESULTS FROM THE REUMAVID STUDY (PHASE 1)". Annals of the Rheumatic Diseases 80 Suppl 1 (2021): 1371-1372. http://dx.doi.org/10.1136/annrheumdis-2021-eular.2417.
    10.1136/annrheumdis-2021-eular.2417
  27. Garrido-Cumbrera, M.; Marzo-Ortega, H.; Christen, L.; Carmona, L.; Correa-Fernández, J.; Sanz-Gómez, S.; Plazuelo-Ramos, P.; et al. "AB0676 FEARS AND HOPES DURING THE COVID-19 PANDEMIC IN PATIENTS WITH RHEUMATIC DISEASES. RESULTS FROM THE REUMAVID STUDY (PHASE 1)". Annals of the Rheumatic Diseases 80 Suppl 1 (2021): 1370-1371. http://dx.doi.org/10.1136/annrheumdis-2021-eular.2405.
    Publicado • 10.1136/annrheumdis-2021-eular.2405
  28. Garrido-Cumbrera, M.; Marzo-Ortega, H.; Christen, L.; Carmona, L.; Correa-Fernández, J.; Sanz-Gómez, S.; Mateus, Elsa; et al. "AB0675 COUNTRY COMPARISON ON THE IMPACT OF THE COVID-19 PANDEMIC ON PATIENTS WITH RHEUMATIC DISEASES. RESULTS FROM THE REUMAVID STUDY (PHASE 1)". Annals of the Rheumatic Diseases 80 Suppl 1 (2021): 1369-1370. http://dx.doi.org/10.1136/annrheumdis-2021-eular.2372.
    10.1136/annrheumdis-2021-eular.2372
  29. Mateus, Elsa. "Assessment of impact of the COVID-19 pandemic from the perspective of patients with rheumatic and musculoskeletal diseases in Europe: results from the REUMAVID study (phase 1)". RMD Open 7 1 (2021): e001546-e001546. http://dx.doi.org/10.1136/rmdopen-2020-001546.
    10.1136/rmdopen-2020-001546
  30. Strangfeld, Anja; Schäfer, Martin; Gianfrancesco, Milena A; Lawson-Tovey, Saskia; Liew, Jean W; Ljung, Lotta; Mateus, Elsa; et al. "Factors associated with COVID-19-related death in people with rheumatic diseases: results from the COVID-19 Global Rheumatology Alliance physician-reported registry". Annals of the Rheumatic Diseases 80 7 (2021): 930-942. http://dx.doi.org/10.1136/annrheumdis-2020-219498.
    Acesso aberto • 10.1136/annrheumdis-2020-219498
  31. Santos, Eduardo J F; Duarte, Catia; Ferreira, Ricardo J O; Pinto, Ana Margarida; Moreira, Ana; Vaz, Carlos; Branco, Catarina Aguiar; et al. "Portuguese multidisciplinary recommendations for non-pharmacological and non-surgical interventions in patients with rheumatoid arthritis". (2021): http://hdl.handle.net/10362/116087.
  32. Gianfrancesco, Milena A; Hyrich, Kimme L; Gossec, Laure; Strangfeld, Anja; Carmona, Loreto; Mateus, Elsa F; Sufka, Paul; et al. "Rheumatic disease and COVID-19: initial data from the COVID-19 Global Rheumatology Alliance provider registries". The Lancet Rheumatology 2 5 (2020): e250-e253. http://dx.doi.org/10.1016/s2665-9913(20)30095-3.
    Publicado • 10.1016/s2665-9913(20)30095-3
  33. De Meulemeester, Marc; Mateus, Elsa; Wieberneit-Tolman, Hilda; Betteridge, Neil; Ireland, Lucy; Petersen, Gudula; Maske, Nina Jeanette; Jansen, Tim L; Perez-Ruiz, Fernando. "Understanding the patient voice in gout: a quantitative study conducted in Europe". BJGP Open (2020): bjgpopen20X101003. http://dx.doi.org/10.3399/bjgpopen20x101003.
    Acesso aberto • Publicado • 10.3399/bjgpopen20x101003
  34. Ferreira, Ricardo J O; de Wit, Maarten; Henriques, Marta; Pinto, Ana F; Duarte, Cátia; Mateus, Elsa; Mendes, Gabriel; da Silva, José A P; Ndosi, Mwidimi. "'It can¿t be zero!' Difficulties in completing patient global assessment in rheumatoid arthritis: a mixed methods study". Rheumatology 59 5 (2019): 1137-1147. http://dx.doi.org/10.1093/rheumatology/kez467.
    Acesso aberto • Publicado • 10.1093/rheumatology/kez467
  35. Mateus, Elsa; Macieira, C.; Cunha-Miranda, L.; Nero, P.; Laires, P.; Bogas, M.; Farinha, S.; et al. "Rheuma SPACE - Standard Practice Aiming Clinical Excellence: description of the methodological approach". Acta reumatologica portuguesa 44 3 (2019): 232-243. PMID: 31543508.
    Acesso aberto • Publicado
  36. Mateus, Elsa. "Moving forward from drug-centred to patient-centred research". European Respiratory Journal (2019): http://dx.doi.org/10.1183/13993003.01870-2018.
    10.1183/13993003.01870-2018
  37. Mateus, E.. "OP0244-PARE Impatients: Discussing agency, empowerment and its impacts on rheumatic patients". Annals of the Rheumatic Diseases 71 Suppl 3 (2014): 138.2-138. http://dx.doi.org/10.1136/annrheumdis-2012-eular.1927.
    Publicado • 10.1136/annrheumdis-2012-eular.1927
Capítulo de livro
  1. Mateus, Elsa Frazão. "Experiência & Ciência: Associações de pessoas com doença e o doente como Perito". In Advocacia da Cidadania de Saúde: Manual para associações de doentes e outros advocates, 127-134. Lisboa, Portugal: Petrony Editora, 2022.
    Publicado
  2. Mateus, Elsa Frazão. "Medicina personalizada, relação médico-doente e plano terapêutico individual". In Desafios do Envelhecimento para a Saúde, a Economia e a Sociedade, editado por Canhão, Helena; Cunha Branco, Jaime, 53-66. Cascais, Portugal: Principia, 2022.
    Publicado
  3. Mateus, Elsa. "Os cidadãos confiam nos cuidados de saúde primários?". In Agenda para a transformação 2030 - In Continuum: cenarização para a evolução dos cuidados de saúde primários na ARSLVT, editado por Ana Harfouche; HELENO, BRUNO, 39-44. Lisboa, Portugal: Administração Regional de Saúde de Lisboa e Vale do Tejo, 2022.
    Publicado
  4. Mateus, Elsa. "APOIO SOCIAL E LABORAL". editado por Andréa Marques; Ricardo J. O. Ferreira. Portugal: Associação Portuguesa de Profissionais de Saúde em Reumatologia (APPSReuma), 2021.
    Publicado
  5. Mateus, Elsa. "Biobancos - perspetivas e preocupações". In Biobancos, investigação e Saúde Pública: promessas e desafios, editado por Silva, J. P. e Barros, H., 123-128. Porto, Portugal: Instituto de Saúde Pública da Universidade do Porto, 2020.
    Publicado
Livro
  1. Mateus, Elsa Frazão. João Lopes Filho: professor, investigador, escritor. Portugal: Rosa de Porcelana. 2023.
    Publicado
  2. Mateus, Elsa. Cultura tradicional no Estado Novo: V Congresso Internacional da Vinha e do Vinho.. Portugal. 2009.
  3. Mateus, Elsa. Agrupamentos de Folclore: Ontem e Hoje.. Portugal. 2004.
Resumo em conferência
  1. Pimentel, G.; Marques, A.; Ferreira, R.; Mateus, E.; Pais, A.. "AB1304-HPR KNOWLEDGE OF HIGH SCHOOL STUDENTS ABOUT RHEUMATIC DISEASES: EFFECT OF AN EDUCATIONAL SESSION JOINTLY PROVIDED BY PORTUGUESE EULAR ASSOCIATIONS". 2020.
    Publicado • 10.1136/annrheumdis-2020-eular.5043
  2. Araújo, Filipe; Duarte, Cláudia; Brandão, Jorge; Cernadas, Rui; Mateus, Elsa; Miranda, Luís Cunha; Silva, José Canas Da; Silva, José Gomes Da; Coelho, Pedro Simões. "AB1194 KNOWLEDGE AND PERCEPTIONS OF PORTUGUESE FAMILY PHYSICIANS TOWARDS ANKYLOSING SPONDYLITIS: RESULTS FROM THE ASSESSMENT OF RESULTS IN ANKYLOSING SPONDYLITIS(AREA) STUDY". Trabalho apresentado em EULAR Congress 2019, Madrid, 2019.
    Publicado • 10.1136/annrheumdis-2019-eular.6335
  3. Araújo, Filipe; Duarte, Cláudia; Brandão, Jorge; Cernadas, Rui; Mateus, Elsa; Miranda, Luís Cunha; Silva, José Canas Da; Silva, José Gomes Da; Coelho, Pedro Simões. "THU0633 ECONOMIC IMPACT OF HEALTHCARE RESOURCE UTILIZATION AND WORK DISABILITY IN PORTUGUESE PATIENTS WITH ANKYLOSING SPONDYLITIS: RESULTS FROM THE ASSESSMENT OF RESULTS IN ANKYLOSING SPONDYLITIS(AREA) STUDY". Trabalho apresentado em EULAR Congress 219, Madrid, 2019.
    Publicado • 10.1136/annrheumdis-2019-eular.3400
  4. Cavique, Catarina; Cláudio, Ana Paula; Carmo, Maria Beatriz; Guerreiro, Mara Pereira; Cavaco, Afonso; Mateus, Elsa. "OP0286 PARE DEVELOPING A VIRTUAL ASSISTANT TO PROMOTE EDUCATION ON OSTEOARTHRITIS". Trabalho apresentado em EULAR Congress, Madrid, 2019.
    Publicado • 10.1136/annrheumdis-2019-eular.967
  5. Araújo, Filipe; Duarte, Claudia; Brandão, Jorge; Cernadas, Rui; Mateus, Elsa; Miranda, Luís Cunha; Silva, José Canas Da; et al. "PARE0008 UNDERSTANDING THE IMPACT OF ANKYLOSING SPONDYLITIS IN DAILY LIFE OF THE PORTUGUESE PATIENTS: RESULTS FROM THE ASSESSMENT OF RESULTS IN ANKYLOSING SPONDYLITIS (AREA) STUDY". Trabalho apresentado em EULAR Congress, Madrid, 2019.
    Publicado • 10.1136/annrheumdis-2019-eular.6277
  6. Mateus, Elsa. "SP0082 How a user-led organisation for rmds enables citizen participation in portugal". 2018.
    http://dx.doi.org/10.1136/annrheumdis-2018-eular.7851
  7. Mateus, Elsa. "MORE PARTICIPATION, BETTER HEALTH – PROMOTING PUBLIC INVOLVEMENT IN HEALTH". 2017.
    10.1136/annrheumdis-2017-eular.5980
  8. Mateus, Elsa. "Becoming a patient research partner in the field of rheumatology. my expectations and the challenges of being educated and taken seriously". 2017.
    10.1136/annrheumdis-2017-eular.7243
  9. Mateus, Elsa. "OP0290-PARE FAMILY PLANNING AND JIA: INFERTILITY AND PARENTHOOD". 2013.
    10.1136/annrheumdis-2013-eular.495
Tese / Dissertação
  1. Mateus, Elsa; Mateus, Elsa Frazão. "Ervas que curam : da "terra das ervanárias" à produção de plantas medicinais e de conhecimento". Doutoramento, 2015. http://hdl.handle.net/10451/20245.
  2. Mateus, Elsa Frazão. "Animais à mesa: zoonoses e estratégias no consumo de carne". Mestrado, 2009. http://catalogo.ul.pt/F/?func=item-global&doc_library=ULB01&type=03&doc_number=000576404.
Atividades

Júri de grau académico

Tema
Tipo de participação 		Nome do candidato (Tipo de grau)
Instituição / Organização
2018/12/20 Tradução para a European Patients´ Academy on Therapeutic Innovation: participação do doente no desenvolvimento de medicamentos
Arguente
 SORAIA CATARINA DE CARVALHO SOARES (Mestrado)
Universidade de Aveiro, Portugal

Consultoria / Parecer

Descrição da atividade Instituição / Organização
2017/01/01 - 2020/12/31 Consultant as Patient Expert, and for Patients’ Involvement in Research (EULAR) in project HarmonicSS -HARMONIzation and integrative analysis of regional, national and international Cohorts on primary Sjögren¿s Syndrome (pSS) towards improved stratification, treatment and health policy making -(European's Union Horizon 2020 Research and Innovation Programme Grant Agreement No 731944 and Swiss State Secretariat for Education, Research and Innovation SERI grant agreement 16.0210). European League Against Rheumatism, Suiça
Distinções

Prémio

2025 EULAR Honorary Member
European League Against Rheumatism, Suiça
2020 Medalha de Mérito Científico / Medal of Scientific Merit
Governo da República Portuguesa Ministério da Ciência Tecnologia e Ensino Superior, Portugal
2019 Prémios de Boas Práticas Infarmed 25+ / Awards Good Practices Infarmed 25+
Infarmed Autoridade Nacional do Medicamento e Produtos de Saúde IP, Portugal

Outra distinção

2018 1st Place Fórum do Cidadão, Projects from Patients Organisations, EUPATI Portugal
Infarmed Autoridade Nacional do Medicamento e Produtos de Saúde IP, Portugal
2007 Prémio Edgar Stene - Portugal
Liga Portuguesa Contra as Doenças Reumáticas, Portugal